Event: Webinar “Advancing the rare disease research agenda” organised by Share4Rare
Date: 16 June, 4pm CET
Venue: Online, register here
This new Share4Rare webinar will focus on the new Share4Rare research feature that is addressed to patient organisations (POs). You will learn:
- How Share4Rare patient-driven research features can benefit your patient organisation through research projects of high scientific quality within your community
- How you can optimally utilize Share4Rare’s PO feature to safely collect your data and and disseminate your research initiative using a global platform
- How can Share4Rare’s PO networking and capacity building can benefit your patient organisation and your patients
Find out more about this webinar here.