18 February | ERN-RND workshop on trial readiness and registries in RND

Event: European Reference Network for Rare Neurological Diseases workshop on trial readiness and registries in RND

Multi-stakeholder workshop (clinicians, industry, patients, regulators, and registry administrators) that will pursue the following objectives:

  • Bring together leading persons of the different stakeholder groups and form a RND trial readiness network at European level
  • Map clinical status of trial readiness for the different RND
  • Discuss and agree minimal quality requirement for trial-ready registries
  • Define areas in which ERN-RND can facilitate trial readiness for RND
  • Form multi-stakeholder working groups for RND and define action points these working groups will work on

Date: February 18 2019

Venue: Amsterdam, the Netherlands