Skip to content
  • Twittter
  • Facebook
  • LinkedIn
  • Youtube
ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
    • Objectives of ERN-RND
    • Diseases Groups Covered
    • ERN-RND coordinators
    • ERN-RND coordination office
    • Patient advocates
    • Work Packages
    • Monitoring
    • Publications Acknowledging ERN-RND
  • Expert Centres
    • … for rare neurological diseases
    • Affiliated partners
    • How to contact expert centres
  • Online case discussion
    • What is the CPMS
    • Who can use it
    • How to use it
    • Special case for CPMS
    • CPMS Helpdesk
    • In practice
  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
  • Education & Training
    • Webinars
    • Past webinars
    • Short Exchange Programme
    • EJP RD funded training – Research on RD
    • Winter School
  • Registry
    • ERN-RND registry objectives
    • Disease Groups covered
    • Pilot Phase
    • Contact
  • Collab­ora­tions
    • EJP RD
      • What is EJP RD?
      • EJP RD mission & goals
      • EJP RD & ERNs
      • EJP RD in a nutshell
    • Solve-RD
      • What is Solve-RD?
      • Main Objectives
      • Implementation Steps
      • Analysis
    • Value of Treatment (VoT)
      • VoT project coordinator
      • Objectives of the VoT project
      • ERN-RND in VoT2
      • Academic partners in VoT2
      • Further reading
  • News & Events
    • News
    • Events
    • Newsletters
    • Meet the members
  • Contact us
  • Twittter
  • Facebook
  • LinkedIn
  • Youtube

Author: eichner

Solve-RD project

Solve-RD project

Continue reading “Solve-RD project”

Author eichnerPosted on June 28, 2018February 20, 2019Categories News

7 – 8 June | ERN-RND Annual Meeting 2018

7 – 8 June | ERN-RND Annual Meeting 2018

Continue reading “7 – 8 June | ERN-RND Annual Meeting 2018”

Author eichnerPosted on June 8, 2018February 20, 2019Categories Events

1st ERN-RND Winter School

1st ERN-RND Winter School

Continue reading “1st ERN-RND Winter School”

Author eichnerPosted on October 27, 2017February 20, 2019Categories News

Webinar Schedule

Latest News

  • EPNS Congress abstract submission and bursary application OPEN

    April 8, 2021
    read more »
  • ERN-RND communication survey

    March 30, 2021
    read more »
  • Research article: “Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases”

    March 24, 2021
    read more »

Latest Tweets

Tweets by ERN_RND

Find us on Facebook

ERN-RND European Reference Network for Rare Neurological Diseases

Latest Events

  • 12-15 April 2021 | International BNA2021 Festival of Neuroscience

    April 15, 2021
    read more »
  • 20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea”

    April 20, 2021
    read more »
  • 4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias”

    May 4, 2021
    read more »

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

  • Twittter
  • Facebook
  • LinkedIn
  • Youtube

Sitemap | Disclaimer and Data Protection

  • Twitter
  • Facebook
  • LinkedIn