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European Reference Network

European Reference Network

for rare or low prevalence complex diseases

  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is the ERN-RND
    • ERN-RND members stories
    • Patient advocates
    • Work Packages
    • Monitoring
  • Expert Centres
  • CPMS
    • Clinical Patient Management System (CPMS)
    • Using the CPMS
  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s Disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
  • News and Events
    • News
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  • Contact us
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Patient organisations – Hereditary Spastic Paraplegias

  • Tom Wahlig Foundation
  • Euro-HSP (Federation of European HSP Associations)
  • ASL-HSP France
  • HSP-Selbsthilfegruppe Deutschland
  • Förderverein für HSP-Förschung

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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