ERN-RND centres – Dystonia

Bulgaria
University Neurological Hospital “St. Naum” Sofia
Contact: Elena Chorbadgieva
Email: elena_8_3@abv.bg

Czech Republic
General University Hospital, Prague
Contact: Jiri KLEMPIR
Email: jiri.klempir@seznam.cz

France
CHU Paris-GH La Pitié Salpêtrière-Charles Foix, Hôpital Pitié-Salepétrière
Centre de Référence Maladies rares Neurogénétique (dystonias)
Département de Neurologie
Contact: Prof. Marie VIDAILHET
Phone: +33 (0)1 42 16 17 94
Email: marie.vidailhet@aphp.fr

Germany
University Hospital Tübingen
Abteilung Neurologie mit Schwerpunkt neurodegenerative Erkrankungen
Zentrum für Neurologie
Hertie-Institut für klinische Hirnforschung (HIH)
Contact: Dr Ebba LOHMANN
Phone: +49 (0)7071 29 82048
Email: ebba.lohmann@uni.tuebingen.de

University Hospital Bonn (UKB)
Zentrum für Seltene Erkrankungen (ZSE)  Bonn (ZSEB)
Contact: Dr. Sebastian PAUS
Phone: +49 (0)228-287-15428
Email: sebastian.paus@ukbonn.de

University Hospital Schleswig-Holstein – Campus Lübeck
Lübecker Zentrum für seltene Erkrankungen (ZSE), Dystonia clinic
Contact: Prof. Tobias BÄUMER
Phone: +49 (0)451 3101 8213
Email: tobias.baeumer@neuro.uni-luebeck.de

University Hospital Munich (LMU)
Arbeitsgruppe Kognitive Neurologie – Neurologische Klinik und Poliklinik
LMU Klinikum der Universität München – Campus Großhadern
Contact: Prof. Adrian DANEK
Phone: +49 (0)89 4400 76676
Email: Adrian.Danek@med.uni-muenchen.de

University Hospital Ulm
Zentrum für Seltene Erkrankungen (ZSE)
Contact: Prof. Bernhard LANDWEHRMEYER
Phone: +49 (0)731 500 57080
Email: bernhard.landwehrmeyer@uni-ulm.de

Hungary
Semmelweis University
Outpatient Clinic of Rare Disorders
Genetics Laboratory, Institute of Genomic Medicine and Rare Disorders,
Head of clinic: Prof. Maria Judit MOLNAR
Phone: +36 1 459 1492
Email: molnar.mariajudit@med.semmelweis-univ.hu

University of Pécs Medical School
Contact: Dr Norbert KOVÁCS
Phone: 37644
Email: kovacs.norbert@pte.hu

Italy
Foundation IRCCS neurological institute Carlo Besta , Milan
Contact: Dr Caterina MARIOTTI
Phone: +39 02 23942269
Email: caterina.mariotti@istituto-besta.it
IRCCS Clinical Institute Humanitas, Rozzano, Milan
Contact: Prof. Alberto ALBANESE
Phone: +39 02 8224 8201
Email: alberto.albanese@unicatt.it

Azienda Ospedaliero-Universitaria Siena
Contact: Prof. Antonio Federico
Phone: +39 0577 585763 – 233222
Email: federico@unisi.it

Pediatric hospital Bambino Gesù, Rome
Unità di Malattie Neuromuscolari e Neurodegenerative – Laboratorio di Medicina Molecolare
Dipartimento di Neuroscienze e Neuroriabilitazione
Head of clinic: Prof. Enrico S. BERTINI
Phone: +39 06 68592105
Email: enricosilvio.bertini@opbq.net

Netherlands
University Medical Center Groningen (UMGC)
Expert Centre for Movement Disorders
Polikliniek Neurologie
Phone: +31 (0)50 361 3500
Email: m.veldthuis@umcq.nl

Radboud University Medical Center Nijmegen (Radboudumc)
Centre for Genetic Movement Disorders
Afdeling Neurologie
Contact: Dr B.P.C. Bart VAN DE WARRENBURG
Phone: +31 (0)24 361 6600
Email: administratie.neuro@radboudumc.nl

Poland
University Hospital Krakow, Rare Neurologic Diseases Clinic
Oddzial Kliniczny Neurologii, Szpital Uniwersytecki w Krakowie
Contact: Prof. Joanna PERA
Phone: +48 12 4248600
Email: neurologia@cm-uj.krakow.pl

Slovenia
University Medical Centre Ljubljana
Contact: Prof. Borut PETERLIN
Phone: +386 1 5401 137
Email: borut.peterlin@guest.arnes.si

Spain
Hospital Clínic i Provincial de Barcelona y Hospital de Sant Joan de Déu
CSUR – National unit of expertise for rare movement disorders
Unidad de Trastornos del Movimiento , Servicio de Neurología Pediátrica
Contact: Dr Juan Darío ORTIGOZA ESCOBAR
Phone: +34 93 253 21 00 Ext. 71465
Email: jortigoza@sjdhospitalbarcelona.org 

UK
University College London Hospitals NHS Foundation Trust
National Hospital for Neurology, Queen Square
Contact: Prof. Kailash BHATIA
Phone: +44 (0)20 3448 4252
Email: k.bhatia@ucl.ac.uk