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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
    • ERN-RND coordinators
    • ERN-RND coordination office
    • Disease Groups
    • Patient advocates
    • ERN-RND members stories
    • Work Packages
    • Monitoring
  • Expert Centres
    • … for rare neurological diseases
    • Affiliated partners
    • How to contact expert centres
  • Online case discussion
    • What is the CPMS
    • Who can use it
    • How to use it
    • Special cases of CPMS usage
    • CPMS Helpdesk
    • ERN in action
    • CPMS use in ERN-RND use cases
  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s Disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
  • Education & Training
    • Webinars
    • Past webinars
    • Winter School
    • Fellowship Exchange
      • General Information
      • Testimonials
  • Registry
    • ERN-RND registry objectives
    • Disease Groups covered
    • Pilot Phase
    • Contact
  • Collab­ora­tions
    • EJP RD
      • What is EJP RD?
      • EJP RD mission & goals
      • EJP RD & ERNs
      • EJP RD in a nutshell
    • Solve-RD
    • Value of Treatment (VoT)
      • VoT project coordinator
      • Objectives of the VoT project
      • ERN-RND in VoT2
      • Academic partners in VoT2
      • Further reading
  • News & Events
    • News
    • Events
    • Newsletters
  • Contact us
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PSP – Study groups & networks

  • CBD solutions
  • Deutsche Parkinson Gesellschaft für Parkinson und Bewegungsstörungen
  • MDS-sponsored Progressive Supranuclear Palsy Study Group

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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