The ERN-RND survey: “Research Priorities” is to be completed by patients & patient representatives (not for professionals) for the rare neurological diseases covered by the network:
- Atypical Parkinson’s Disease (MSA, PSP, Genetic Parkinson’s Disease)
- Frontotemporal dementia
- Huntington’s disease & choreas
- Dystonia§NBIA/paroxysmal disorders
Results will guide research carried out within ERN-RND in the next 5 years. Deadline to fill in the survey: 8 March.
The survey is available in 5 languages: