ERN-RND, ZSE and Solve-RD coordinating teams are based in the Research Management office in Tübingen, Germany (Institute of Medical Genetics and Applied Genomics). We work daily with patients, clinicians, researchers and other rare disease stakeholders in order to promote and enhance research in the field, raise awareness among the public and improve patient care.
Being part of a large network, we believe that collaboration is essential, we cannot work alone!
Today is #RareDiseaseDay and we support the rare disease community: together we are stronger!
More information about this day, that takes place each year every last day of February, can be found here: https://rarediseaseday.org/