The European Reference Networks are featured in
the European Commission’s EU Protects campaign
which aims to raise awareness of the ways in which
the EU combats global challenges to protect its citizens.
The ERNs are one example of how strong and efficient
European collaboration can make a difference in people’s lives.
EpiCARE, the European Reference Network for rare and complex epilepsies, is featured in the EUProtect video telling the story of how a 4 year old Finnish boy with a rare abnormality in the brain who was suffering from 20-30 seizures per day was given a diagnosis and treatment with the support of the ERNs. This could be achieved thanks to knowledge sharing across 7 European countries and experts collaborating all bringing their specific expertise in rare conditions.
European Reference Networks give patients and doctors across the EU access to the best expertise, while facilitating the timely exchange of life-saving knowledge, often without the need to travel
to another country.
The video and more information can be found here.