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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: Events

19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

Continue reading “19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting””

Author ERN-RNDPosted on October 10, 2021October 11, 2021Categories Events

26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

Continue reading “26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders””

Author ERN-RNDPosted on October 10, 2021October 11, 2021Categories Events

7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

Continue reading “7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update””

Author ERN-RNDPosted on October 7, 2021July 5, 2021Categories Events

3-7 October 2021 | XXV World Congress of Neurology

3-7 October 2021 | XXV World Congress of Neurology

Continue reading “3-7 October 2021 | XXV World Congress of Neurology”

Author ERN-RNDPosted on October 7, 2021October 23, 2020Categories Events

September 2021 | Dystonia Awareness Month

Continue reading “September 2021 | Dystonia Awareness Month”

Author ERN-RNDPosted on September 30, 2021March 26, 2021Categories Events

28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

Continue reading “28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism””

Author ERN-RNDPosted on September 28, 2021March 18, 2021Categories Events

17-22 September 2021 | MDS Virtual Congress 2021

17-22 September 2021 | MDS Virtual Congress 2021

Continue reading “17-22 September 2021 | MDS Virtual Congress 2021”

Author ERN-RNDPosted on September 22, 2021January 6, 2021Categories Events

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”

Continue reading “14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease””

Author ERN-RNDPosted on September 14, 2021March 18, 2021Categories Events

9-11 September 2021 | EHDN plenary meeting

9-11 September 2021 | EHDN plenary meeting

Continue reading “9-11 September 2021 | EHDN plenary meeting”

Author ERN-RNDPosted on September 11, 2021July 7, 2021Categories Events

4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day

4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day

Continue reading “4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day”

Author ERN-RNDPosted on September 4, 2021August 23, 2021Categories Events

6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?”

6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?”

Continue reading “6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?””

Author ERN-RNDPosted on July 6, 2021January 13, 2021Categories Events

30 June – 2 July 2021 | ERN-RND Annual Meeting

30 June – 2 July 2021 | ERN-RND Annual Meeting
Continue reading “30 June – 2 July 2021 | ERN-RND Annual Meeting”
Author ERN-RNDPosted on July 1, 2021May 25, 2021Categories Events

19-22 June 2021 | EAN Congress 2021

19-22 June 2021 | EAN Congress 2021

Continue reading “19-22 June 2021 | EAN Congress 2021”

Author ERN-RNDPosted on June 22, 2021June 15, 2021Categories Events

15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy”

15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy”

Continue reading “15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy””

Author ERN-RNDPosted on June 15, 2021January 13, 2021Categories Events

8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies”

8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies”

Continue reading “8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies””

Author ERN-RNDPosted on June 8, 2021June 7, 2021Categories Events

8 June 2021 | Value of Treatment 2 Synthesis Meeting

8 June 2021 | Value of Treatment 2 Synthesis Meeting

Continue reading “8 June 2021 | Value of Treatment 2 Synthesis Meeting”

Author ERN-RNDPosted on June 8, 2021June 10, 2021Categories Events

27-28 May 2021 | ERICA kick-off meeting & first General Assembly

27-28 May 2021 | ERICA kick-off meeting & first General Assembly

Continue reading “27-28 May 2021 | ERICA kick-off meeting & first General Assembly”

Author ERN-RNDPosted on May 28, 2021May 28, 2021Categories Events

18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)

18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)

Continue reading “18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)”

Author ERN-RNDPosted on May 18, 2021January 13, 2021Categories Events

7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations”

7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations”

Continue reading “7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations””

Author ERN-RNDPosted on May 7, 2021April 15, 2021Categories Events

4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias”

4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias”

Continue reading “4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias””

Author ERN-RNDPosted on May 4, 2021January 12, 2021Categories Events

20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea”

20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea”

Continue reading “20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea””

Author ERN-RNDPosted on April 20, 2021January 12, 2021Categories Events

12-15 April 2021 | International BNA2021 Festival of Neuroscience

12-15 April 2021 | International BNA2021 Festival of Neuroscience

Continue reading “12-15 April 2021 | International BNA2021 Festival of Neuroscience”

Author ERN-RNDPosted on April 15, 2021March 19, 2021Categories Events

13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias”

13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias”

Continue reading “13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias””

Author ERN-RNDPosted on April 13, 2021March 24, 2021Categories Events

26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?”

26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?”
Continue reading “26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?””
Author ERN-RNDPosted on March 26, 2021March 30, 2021Categories Events

23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity”

23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity”

Continue reading “23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity””

Author ERN-RNDPosted on March 23, 2021March 18, 2021Categories Events

23 March 2021 | 6ème Journée Nationale BRAIN-TEAM

23 March 2021 | 6ème Journée Nationale BRAIN-TEAM

Continue reading “23 March 2021 | 6ème Journée Nationale BRAIN-TEAM”

Author ERN-RNDPosted on March 23, 2021February 26, 2021Categories Events

15-21 March 2021 | Brain Awareness Week

15-21 March 2021 | Brain Awareness Week

Continue reading “15-21 March 2021 | Brain Awareness Week”

Author ERN-RNDPosted on March 21, 2021March 24, 2021Categories Events

13-14 March 2021 | HDYO’s International Young Adult Virtual Congress

13-14 March 2021 | HDYO’s International Young Adult Virtual Congress

Continue reading “13-14 March 2021 | HDYO’s International Young Adult Virtual Congress”

Author ERN-RNDPosted on March 14, 2021March 10, 2021Categories Events

1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access”

1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access”

Continue reading “1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access””

Author ERN-RNDPosted on March 2, 2021February 25, 2021Categories Events

28 February 2021 | Rare Disease Day

28 February 2021 | Rare Disease Day

Continue reading “28 February 2021 | Rare Disease Day”

Author ERN-RNDPosted on February 28, 2021March 3, 2021Categories Events

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Webinar Schedule

Latest News

  • Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy”

    March 1, 2022
    read more »
  • Publication from the European Metachromatic Leukodystrophy initiative (MLDi)

    February 16, 2022
    read more »
  • Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion”

    February 9, 2022
    read more »

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ERN-RND European Reference Network for Rare Neurological Diseases

Latest Events

  • 18 – 21 May| 34th European Academy Of Childhood Disability (EACD) Annual Meeting

    May 22, 2022
    read more »
  • 21 – 26 May 2022 | 15th World Congress of Neuromodulation (INS 2022)

    May 26, 2022
    read more »
  • 25 – 28 June 2022 | 8th Congress of the European Academy of Neurology – Europe 2022

    June 29, 2022
    read more »

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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