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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: Events

24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases

24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases

Continue reading “24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases”

Author ERN-RNDPosted on March 26, 2022December 14, 2021Categories Events

7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation

7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation
Continue reading “7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation”
Author ERN-RNDPosted on March 9, 2022January 28, 2022Categories Events

22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia

22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia

Continue reading “22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia”

Author ERN-RNDPosted on February 22, 2022January 25, 2022Categories Events

9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform”

9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform”

Continue reading “9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform””

Author ERN-RNDPosted on February 9, 2022January 25, 2022Categories Events

8 February 2022 | EURORDIS Black Pearl Award Event

8 February 2022 | EURORDIS Black Pearl Award Event

Continue reading “8 February 2022 | EURORDIS Black Pearl Award Event”

Author ERN-RNDPosted on February 8, 2022January 10, 2022Categories Events

4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases

4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases

Continue reading “4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases”

Author ERN-RNDPosted on January 11, 2022December 14, 2021Categories Events

9 – 11 December 2021 | Workshop: The Future of Medical Data Sharing in Clinical Neurosciences

9 – 11 December 2021 | Workshop:  The Future of Medical Data Sharing in Clinical Neurosciences
Digital meeting

HBP, EBRAINS and the EAN invite the entire scientific community to join this workshop on the Future of Medical Data Sharing in Neuroscience.

More information.

Author ERN-RNDPosted on December 12, 2021November 29, 2021Categories Events

8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021

8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021

Jointly with 27. Jahrestagung der Deutschen Gesellschaft für Neurorehabilitation

Continue reading “8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021”
Author ERN-RNDPosted on December 12, 2021November 29, 2021Categories Events

25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021

25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021

Continue reading “25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021”

Author ERN-RNDPosted on November 26, 2021November 15, 2021Categories Events

25 November 2021 | EJP RD resource webinar on Orphanet

25 November 2021 | EJP RD resource webinar on Orphanet

Continue reading “25 November 2021 | EJP RD resource webinar on Orphanet”

Author ERN-RNDPosted on November 25, 2021November 17, 2021Categories Events

22-23 November 2021 | Ataxia Global Initiative symposium

22-23 November 2021 | Ataxia Global Initiative symposium

Continue reading “22-23 November 2021 | Ataxia Global Initiative symposium”

Author ERN-RNDPosted on November 23, 2021November 3, 2021Categories Events

18 – 19 November | First International conference on Rare Diseases and Paediatric Research

18 – 19 November | First International conference on Rare Diseases and Paediatric Research

Continue reading “18 – 19 November | First International conference on Rare Diseases and Paediatric Research”

Author ERN-RNDPosted on November 20, 2021November 3, 2021Categories Events

18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

Continue reading “18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference”

Author ERN-RNDPosted on November 19, 2021September 23, 2021Categories Events

4 November | Drug repurposing for rare diseases workshop series

4 November | Drug repurposing for rare diseases workshop series

Continue reading “4 November | Drug repurposing for rare diseases workshop series”

Author ERN-RNDPosted on November 4, 2021November 3, 2021Categories Events

25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)

25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)

Continue reading “25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)”

Author ERN-RNDPosted on October 26, 2021October 26, 2021Categories Events

15-16 October 2021 | Italian Mitochondrial Disease Conference 2021

15-16 October 2021 | Italian Mitochondrial Disease Conference 2021
Continue reading “15-16 October 2021 | Italian Mitochondrial Disease Conference 2021”
Author ERN-RNDPosted on October 16, 2021September 8, 2021Categories Events

15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment

15 &  22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment

Continue reading “15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment”

Author ERN-RNDPosted on October 15, 2021October 11, 2021Categories Events

9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias”

9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias”

Continue reading “9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias””

Author ERN-RNDPosted on October 10, 2021October 11, 2021Categories Events

12 October 2021 | ERN-RND webinar “Functional gait disorders: a sign-based approach”

12 October 2021 | ERN-RND webinar “Functional gait disorders: a sign-based approach”

Continue reading “12 October 2021 | ERN-RND webinar “Functional gait disorders: a sign-based approach””

Author ERN-RNDPosted on October 10, 2021October 11, 2021Categories Events

19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

Continue reading “19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting””

Author ERN-RNDPosted on October 10, 2021October 11, 2021Categories Events

26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

Continue reading “26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders””

Author ERN-RNDPosted on October 10, 2021October 11, 2021Categories Events

18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?”

18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?”

Continue reading “18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?””

Author ERN-RNDPosted on October 10, 2021October 11, 2021Categories Events

7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

Continue reading “7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update””

Author ERN-RNDPosted on October 7, 2021July 5, 2021Categories Events

3-7 October 2021 | XXV World Congress of Neurology

3-7 October 2021 | XXV World Congress of Neurology

Continue reading “3-7 October 2021 | XXV World Congress of Neurology”

Author ERN-RNDPosted on October 7, 2021October 23, 2020Categories Events

September 2021 | Dystonia Awareness Month

Continue reading “September 2021 | Dystonia Awareness Month”

Author ERN-RNDPosted on September 30, 2021March 26, 2021Categories Events

28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

Continue reading “28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism””

Author ERN-RNDPosted on September 28, 2021March 18, 2021Categories Events

17-22 September 2021 | MDS Virtual Congress 2021

17-22 September 2021 | MDS Virtual Congress 2021

Continue reading “17-22 September 2021 | MDS Virtual Congress 2021”

Author ERN-RNDPosted on September 22, 2021January 6, 2021Categories Events

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”

Continue reading “14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease””

Author ERN-RNDPosted on September 14, 2021March 18, 2021Categories Events

9-11 September 2021 | EHDN plenary meeting

9-11 September 2021 | EHDN plenary meeting

Continue reading “9-11 September 2021 | EHDN plenary meeting”

Author ERN-RNDPosted on September 11, 2021July 7, 2021Categories Events

4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day

4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day

Continue reading “4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day”

Author ERN-RNDPosted on September 4, 2021August 23, 2021Categories Events

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Webinar Schedule

Latest News

  • TIME TO ACT – IMPROVING RARE DISEASE DIAGNOSIS AND SOLVING THE UNSOLVED RARE DISEASE THROUGH COLLABORATION IN EUROPE

    May 11, 2023
    The Solve-RD consortium and associated European Solve-RD network, including among others six European Reference Networks, EURORDIS, Orphanet and leading European …read more »
  • 35th Annual Meeting EACD

    May 10, 2023
    The 35th Annual Meeting EACD “to be held between 24 – 27 May 2023 in Ljubljana, Slovenia, hosted by University …read more »
  • 12th EURORDIS Black Pearl Awards Ceremony: recording online

    March 6, 2023
    After 2 years online, it has been an absolute pleasure to gather together again to celebrate our amazing awardees with over …read more »

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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