Events – Page 2 – ERN-RND | European Reference Network on Rare Neurological Diseases

22-23 November 2021 | Ataxia Global Initiative symposium

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18 – 19 November | First International conference on Rare Diseases and Paediatric Research

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18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

Continue reading “18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference”

4 November | Drug repurposing for rare diseases workshop series

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25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)

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15-16 October 2021 | Italian Mitochondrial Disease Conference 2021

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15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment

Continue reading “15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment”

18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?”

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9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias”

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12 October 2021 | ERN-RND webinar “Functional gait disorders: a sign-based approach”

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19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

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26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

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7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

Continue reading “7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update””

3-7 October 2021 | XXV World Congress of Neurology

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September 2021 | Dystonia Awareness Month

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28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

Continue reading “28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism””

17-22 September 2021 | MDS Virtual Congress 2021

Continue reading “17-22 September 2021 | MDS Virtual Congress 2021”

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”

Continue reading “14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease””

9-11 September 2021 | EHDN plenary meeting

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4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day

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6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?”

Continue reading “6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?””

30 June – 2 July 2021 | ERN-RND Annual Meeting

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19-22 June 2021 | EAN Congress 2021

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15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy”

Continue reading “15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy””

8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies”

Continue reading “8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies””

8 June 2021 | Value of Treatment 2 Synthesis Meeting

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27-28 May 2021 | ERICA kick-off meeting & first General Assembly

Continue reading “27-28 May 2021 | ERICA kick-off meeting & first General Assembly”

18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)

Continue reading “18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)”

7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations”

Continue reading “7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations””

4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias”

Continue reading “4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias””

ERN-RND supports Rare Disease Day
November 17, 2022
Rare Disease Day is the official international awareness-raising campaign for rare diseases which takes place on the last day of …read more »
EURORDIS PHOTO AWARD 2023
November 17, 2022
Photo submissions for the Photo Award 2023 are open, until 22nd January 2023. The EURORDIS Photo Award is an opportunity …read more »
Publication: “Recognizing early MRI signs (or their absence) is crucial in diagnosing metachromatic leukodystrophy”
November 8, 2022
Article: Recognizing early MRI signs (or their absence) is crucial in diagnosing metachromatic leukodystrophy Authors: Daphne H. Schoenmakers, Shanice Beerepoot, …read more »

Multidisciplinary Fetal Diagnostics Winter School
December 8, 2022
07-08 December 2022, Paris, France The Winter School on Fetal Diagnosis organised by the ERN-ITHACA aims to address a learning …read more »
Workshop on epileptogenesis
December 31, 2022
The third edition of the Rome workshop “In search of lost time” is taking place this winter, from December 13th to …read more »
EPNS Congress 2023, Prague
June 24, 2023
SAVE THE DATE/Abstracts welcome: EPNS Congress 20-24 June 2023 Congress Center Prague Welcome to the 15th Congress of the European …read more »