Webinars

Disease-Specific
Neuro­reha­bilitation
Advanced Therapies
Paediatric
Clinical Studies
Deep Brain Stimulation

ERN-RND webinars in collaboration with ERN EURO-NMD and EAN

ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.

Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

Recorded webinars:  The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.

Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

Next webinar organised by ERN-RND will be on:

4 June 2024: Genetic Testing in Ataxias and HSP - in whom, when and how
Rebecca Schüle, Ludger Schöls, University Hospital Heidelberg & University Hospital Tübingen, Germany

Date Topic Speaker Institution ERN Focus
04 June 2024, 3 - 4 pm CET Genetic Testing in Ataxias and HSP - in whom, when and how Rebecca Schüle, Ludger Schöls (University Hospital Heidelberg & University Hospital Tübingen, Germany) ERN-RND
25 June 2024, 3 - 4 pm CET Autoimmune parkinsonism Jeroen Kerstens Antwerp University Hospital, Belgium ERN-RND
24 September 2024, 3 - 4 pm CET Clinical Neurophysiology in Dystonia Anke Snijders Radboud University Medical Center, Netherlands ERN-RND
22 October 2024, 3 - 4 pm CET Neurogeriatric Aspects and Neurological aspects in Palliative Care of MSA, PSP and advanced PD Martin Klietz Hannover Medical School, Germany ERN-RND
05 November 2024, 3 - 4 pm CET Diagnostic Approach to Childhood-onset Chorea Juan Darío Ortigoza-Escobar Hospital Sant Joan de Déu, Barcelona, Spain ERN-RND
Postponed Diagnostic workup for genito-urinary dysfunctions in atypical parkinsonism Pietro Guaraldi Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy ERN-RND

GENE THERAPY Webinar Series

The webinar series on Gene Therapy is co-organized by ERN-RND, EURO-NMD, ERN EpiCARE and the European Academy of Neurology (EAN), where we’ll delve into the latest advancements and breakthroughs in this interesting field. Look forward to cutting-edge research, clinical applications and successes, ethical considerations and future prospects as well as to expert discussions and Q&A Sessions.

Date Topic Speaker Institution ERN Focus
18 April 2024, 4 pm CEST Episode 3

Lessons Learned Across Different Disorders and Challenges in the Development of Gene Therapies

Kathrin Meyer Children’s Hospital, Columbus, Ohio USA EURO-NMD
14 May 2024, 4 pm CEST Episode 4

N-of-1 to Many Personalized Therapies

Terry Pirovolakis (Founder of CureSPG50 and Elpida Therapeutics, Greece) EURO-NMD
23 May 2024, 4 pm CEST Episode 5

Safety Issues in Gene Therapies and how to Address them

tba tba epiCARE
29 May 2024, 4 pm CEST Episode 6

Genetic Therapies and Therapy Developments for Muscular Dystrophies (DMD, LGMD)

Annemieke Aartsma-Rus Leiden University Medical Center, the Netherlands EURO-NMD
06 June 2024, 4 pm CEST Episode 7

Genetic Therapies and Therapy Developments for Epileptic Disorders

tba tba epiCARE
13 June 2024, 4 pm CEST Episode 8

Genetic Therapies and Therapy Developments for ALS

Juan Francisco Vázquez Costa University of Valencia, Spain EURO-NMD
20 June 2024, 4 pm CEST Episode 9

Health technology assessment of genetic therapies

tba tba epiCARE
27 June 2024, 4 pm CEST Episode 10

Genetic therapies and therapy developments for SMA

Jan Kirschner Medical Center – University of Freiburg, Germany EURO-NMD
02 July 2024, 4 pm CEST Episode 11

State of the art of clinical stage gene therapies for Leukodystrophies

Caroline Sevin Kremlin Bicêtre Hospital, France ERN-RND
23 July 2024, 4 pm CEST Episode 12

Genetic therapies and therapy developments for rare movement disorders (HD, SCA)

Willeke van Roon-Mom Leiden University Medical Center, the Netherlands

 

ERN-RND

Webinars from partner professional organisations

Webinars from other organisations

Solve-RD

Ataxia Global Initiative

SJD Formación de Déu

European Huntington's Disease Network

All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.

Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.