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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
    • Objectives of ERN-RND
    • Diseases Groups Covered
    • ERN-RND coordinators
    • ERN-RND coordination office
    • ERN-RND board
    • Patient advocates
    • Work Packages
    • Monitoring
    • Publications Acknowledging ERN-RND
  • Expert Centres
    • … for rare neurological diseases
    • Full members and affiliated partners
    • How to contact expert centres
    • Supporting partners
    • Videos from our members
  • Online case discussion with CPMS
    • What is the CPMS
    • Who can use it
    • How to use it
    • Special case for CPMS
    • CPMS Helpdesk
    • Videos
  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
  • Education & Training
    • Webinars
    • Past webinars
    • Short Exchange Programme
    • EJP RD funded training – Research on RD
    • Winter School
  • Registry
    • ERN-RND registry objectives
    • Disease Groups covered
    • Pilot Phase
    • Registry Manual
    • Contact
  • Collab­ora­tions
    • EJP RD
      • What is EJP RD?
      • EJP RD mission & goals
      • EJP RD & ERNs
      • EJP RD in a nutshell
    • Solve-RD
      • What is Solve-RD?
      • Main Objectives
      • Implementation Steps
      • Analysis
    • Value of Treatment (VoT)
      • VoT project coordinator
      • Objectives of the VoT project
      • ERN-RND in VoT2
      • Academic partners in VoT2
      • Further reading
  • News & Events
    • News
    • Events
    • Newsletters
    • Meet the members
  • Contact us
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ERN-RND expert centres in Paris

University Hospital Henri Mondor, National Reference Centre for Huntington’s Disease, France

Pitié-Salpêtrière Hospital, National Reference Centre « Neurogenetics », Paris, France

Webinar Schedule

Latest News

  • Holm Graessner, coordinator of ERN-RND, obtains the EURORDIS European Rare Disease Leadership Award 2023

    January 17, 2023
    This is really a great honour, not just for me but for my team and the people I collaborate with. …read more »
  • European Joint Programme on Rare Diseases (EJP RD)

    December 9, 2022
    Call for Proposals 2023 “Natural History Studies addressing unmet needs in Rare Diseases” The European Joint Programme on Rare Diseases …read more »
  • Abstract submission for the EAN 2023 is open!

    December 9, 2022
    Abstract Submission Presenting your research at Europe’s largest neurology forum has always been exciting, and this year will be even …read more »

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ERN-RND European Reference Network for Rare Neurological Diseases

Latest Events

  • Samuel Belzberg 6th International Dystonia Symposium

    June 3, 2023
    1-3 June 2023, Dublin Hear from expert faculty as they discuss and debate cutting edge dystonia research. With over sixty …read more »
  • EPNS Congress 2023, Prague

    June 24, 2023
    SAVE THE DATE/Abstracts welcome: EPNS Congress 20-24 June 2023 Congress Center Prague Welcome to the 15th Congress of the European …read more »
  • EAN 2023, 1-4 July, Budapest

    July 4, 2023
    Overarching Theme Budapest 2023: Neurology beyond the Big Data The amount of data available in neurology, neuroscience, neurobiology and related …read more »

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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