EURORDIS, alongside 57 partner organisations of the European Conference on Rare Diseases and Orphan Products 2022, co-signed a letter to call on the European Commission to take forward the conclusions of the conference for a European Action Plan on Rare Diseases.
58 organisations – representing patient organisations, learned societies, ERN coordinating centres, health and research groups and initiatives, and industry umbrella groups – signed up to reiterate the conclusions of the Conference.