Patient Journey Hereditary Spastic Paraplegias (HSPs)
Patient Journeys are info-graphical overviews that visualize patients’ needs in the care of their rare disease. Because Patient Journeys are designed from the patient’s perspective, they allow clinicians to effectively address the needs of rare disease patients. Patient Journeys consider that patients’ needs may differ at different stages of the disease – e.g., initial symptoms … Continue reading Patient Journey Hereditary Spastic Paraplegias (HSPs)
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