20 April 2021


Dear users,

The Clinical Patient Management System (CPMS) has been updated since 3 March.

What remained the same?
  • You will still find the platform here
  • All login details are still valid and the login procedure is unchanged
  • CPMS remains your first choice for safe e-consultations
Improvements – the highlights:
  • Removal of workflow: go easily back-and-forth in the new tab system for all activities in your panel. Enter patient information, upload files, invite panel members, schedule meetings and write outcomes/contributions any time you want!
  • Attachments: all uploaded clinical data is conveniently accessible in a new tab
  • Contributions: copy-paste from others for faster processing
  • Updated: new or updated ERN-RND documents ensure progress with your case
CPMS User guide: from first login to entering a case.
Best practices: guiding you towards your e-consultation.

The most recent versions of these documents can always be found on the Online case discussion webpage.

Work in progress:
  • Simplification of patient consultation form for ERN-RND has been requested


ERN-RND proudly presents its webinar on:

"Presenting the new CPMS functionalities and the principle of e-consultations"

The webinar will take place on 7 May 2021, 3-4 pm CET.

Following an introduction to new key features of the latest CPMS version, a case discussion will illustrate the principles of e-consultations using CPMS.

Martje Pauly (Centre for Rare Diseases in Lübeck, Germany) will present a case of a 4-year old patient that after a prolonged birth with asphyxia and reanimation started to suffer from impaired hearing (with 6 months), delayed motor and speech development and a severe generalised choreatic movement disorder without spasticity or dystonia since she was two years old.
Her case will then be discussed by a panel of experts in the field.


You don’t have a CPMS account yet? You have been inactive for more than a year and now you can’t log in? You have questions concerning CPMS?
Contact us:
Best wishes,

website twitter youtube facebook linkedin