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ERN-RND Annual Meeting 2026 – Registration open
on 08-10 October 2026 in Rome, Italy. Continue reading
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Scientific Symposium “Registries for RND”
Interested in Registries for Rare Neurological Diseases? Then join our Scientific Symposium on October 10 – online and free of… Continue reading
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ERN-RND Postgraduate Curriculum launched
We are proud to present the first UEMS approved medical training on Rare Neurological Diseases, which we’ve launched during this… Continue reading
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ePAG visit at Motol University Hospital in Prague
Like every year our ePAGs visit one of our expert centers to learn more about their work and how they… Continue reading
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EAN2026: Join our Talk by Holm Graessner on our Postgraduate Curriculum
Our coordinator Holm Graessner will introduce our new Postgraduate Curriculum at this year’s EAN Congress. Don’t miss it and join… Continue reading
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ERNs Flagship Manuscript Published
The European Reference Network (ERN) flagship manuscript has just been published in the Orphanet Journal for Rare Disease. The manuscript… Continue reading
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ERN-RND Spring School: Next Generation Sequencing Diagnostics for Rare Neurological Diseases
The registration for our Spring School “Next Generation Sequencing Diagnostics for Rare Neurological Diseases” taking place on May 5–7 is… Continue reading
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ePAG Nataliya Grigorova receives EURORDIS’ Black Pearl Award 2026
Our ePAG Nataliya Grigorova received the Holistic Care Award for her work in the Bulgarian Huntington Association – Congratulations, and… Continue reading
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Declaration on the European Innovation and Care Ecosystem for Rare and Complex Diseases
Last December’s High Level Meeting on a European Innovation and Care Ecosystem for Rare and Complex Diseases brought together policymakers,… Continue reading
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ERN-RND | European Reference Network on Rare Neurological Diseases
for rare or low prevalence complex diseases