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EAN2026: Join our Talk by Holm Graessner on our Postgraduate Curriculum
Our coordinator Holm Graessner will introduce our new Postgraduate Curriculum at this year’s EAN Congress. Don’t miss it and join… Continue reading
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ERNs Flagship Manuscript Published
The European Reference Network (ERN) flagship manuscript has just been published in the Orphanet Journal for Rare Disease. The manuscript… Continue reading
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ERN-RND Spring School: Next Generation Sequencing Diagnostics for Rare Neurological Diseases
The registration for our Spring School “Next Generation Sequencing Diagnostics for Rare Neurological Diseases” taking place on May 5–7 is… Continue reading
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ePAG Nataliya Grigorova receives EURORDIS’ Black Pearl Award 2026
Our ePAG Nataliya Grigorova received the Holistic Care Award for her work in the Bulgarian Huntington Association – Congratulations, and… Continue reading
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Declaration on the European Innovation and Care Ecosystem for Rare and Complex Diseases
Last December’s High Level Meeting on a European Innovation and Care Ecosystem for Rare and Complex Diseases brought together policymakers,… Continue reading
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Holm Graessner at the Brain Innovation Days 2025
Our coordinator Holm Graessner is participating in the Brain Innovation Days’ Platinum Panel “Advancing Adaptive Pathways and Real-World Evidence for… Continue reading
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Scientific Symposium “European Healthcare for RND patients”
ERN-RND is organising a Scientific Symposium on “European Healthcare for RND Patients” on October 28, which will be held online… Continue reading
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Treatabolome for Dominant Ataxias – Interview David Gomez
For some rare paediatric ataxias treatments do exist, but unfortunately they are not always well-known. In oder to accelerate diagnosis… Continue reading
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ePAG visit at Children’s Hospital Sant Joan de Déu, Barcelona
Having a rare disease means spending a lot of time around doctors and hospitals. Places, that even adults will not… Continue reading
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ERN-RND | European Reference Network on Rare Neurological Diseases
for rare or low prevalence complex diseases