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- November 4, 2024 ERN-RND Newsletter - November 2024
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- December 16, 2021 ERN-RND Bulletin - December 2021
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- April 20, 2021 ERN-RND Newsletter - SPECIAL CPMS EDITION
- April 1, 2021 ERN-RND Newsletter - April 2021
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- February 1, 2021 ERN-RND Newsletter - February 2021
- December 14, 2020 Press release - UK healthcare professionals warn on detrimental effect of Brexit on people with rare diseases - press release
- December 11, 2020 ERN-RND Newsletter - December 2020
- November 3, 2020 ERN-RND Newsletter - November 2020
- October 1, 2020 ERN-RND Newsletter - October 2020
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- February 3, 2020 ERN-RND Newsletter - February 2020
- December 12, 2019 ERN-RND Newsletter - December 2019
- November 15, 2019 ERN-RND Newsletter - November 2019
- October 4, 2019 ERN-RND Newsletter - October 2019
- September 3, 2019 ERN-RND Newsletter - September 2019
- July 16, 2019 ERN-RND Newsletter - July 2019
- June 18, 2019 ERN-RND Newsletter - June 2019
- May 20, 2019 ERN-RND Newsletter - May 2019
- April 16, 2019 ERN-RND Newsletter - April 2019
- March 18, 2019 ERN-RND Newsletter - March 2019
- February 11, 2019 ERN-RND Newsletter - Special Edition - Diagnostic Flowcharts
- January 10, 2019 ERN-RND Newsletter - January 2019
- November 28, 2018 ERN-RND Newsletter - November 2018
Latest News
- New Study on MLDThe combination of newborn screening, care pathway and respective therapies led to a major breakthrough … Continue reading “New Study on MLD”
- Our Patient Journeys at EURORDIS Podcast “ERNs on Air”Patient Journeys are practical quick overviews that guide you through the stages of a rare … Continue reading “Our Patient Journeys at EURORDIS Podcast “ERNs on Air””
- 100th ERN-RND Webinar!We are happy to announce that our 100th webinar on rare neurological diseases will be … Continue reading “100th ERN-RND Webinar!”
- EAN 2024: Come and visit us!We are looking forward to meeting you at this year’s EAN Congress: come and visit … Continue reading “EAN 2024: Come and visit us!”
- Recordings of ERN-RND Spring School 2024 onlineIf you missed a session of our Spring School “DBS in Dystonia” you can now … Continue reading “Recordings of ERN-RND Spring School 2024 online”
- New Publication on NGS for RNDRead now our newly published paper on “Quality assurance for next-generation sequencing diagnostics of rare … Continue reading “New Publication on NGS for RND”
- The ERN-RND ePAG visits the Medical University Innsbruck“Getting coordinated care is not a pipe-dream. It is a reality in Innsbruck and can … Continue reading “The ERN-RND ePAG visits the Medical University Innsbruck”
- ERN-RND Spring School 2024Our 5th Winter School will be a Spring School this year and will focus on … Continue reading “ERN-RND Spring School 2024”