Atypical Parkinsonian Syndromes and Genetic Parkinson’s Disease

This Disease Knowledge page provides reference information on care of atypical parkinsonism: Multiple System Atrophy and Progressive Supranuclear Palsy.

Disease Knowledge Documents

Information and knowledge that has been developed or endorsed by ERN-RND can be found in blue boxes.

Defintion

ERN-RND Centres for Atypical and Genetic PD

Centres and contact details for MSA, PSP, Genetic Parkinson’s Disease

Care Standards

Available in many European languages.

Diagnosis

Diagnostic Flowchart for Atypical Parkinsonism and Genetic PD (update 03/2026)

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Diagnosis of Atypical Parkinsonism for General Neurologists / General Practitioners

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Clinical Rating Scales

MDS-UPDRS: Clinical rating scales for Genetic Parkinson’s Disease (Updated 2024)

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UMSARS: Clinical rating scales for Multiple System Atrophy (Updated 2024)

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PSPRS: Clinical rating scales for Progressive Supranuclear Palsy (Updated 2024)

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Guidelines

NEUROGED Guidelines:
EAN x EFAS x INUS Guidelines on the assessment and treatment of neurogenic urinary and sexual symptoms

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Neurorehabilitation

ParkinsonNet Guideline

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Online Medical Education

Webinar recordings

Patient Journeys

Available in many European languages .

Patient Journey for Multiple System Atrophy

Patient Journey Multiple System Atrophy

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Flyer Patient Journey Multiple System Atrophy

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Information for Patients – Endorsed by ERN-RND

Available in many European languages .

Leaflets

Information for Patients

Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.