Welcome to ERN-RND

ERN-RND statement for RND patients:

Since March 2020, hospitals and outpatient clinics all across Europe have undertaken all conceivable organizational measures not only to effectively treat patients with Covid19, but also protect other patients from infection with the corona virus SARS-CoV2.

COVID-19 vaccination in rare neurological diseases

Many patients with rare neurological diseases (RND) are wondering if their disease is bringing specific risk factors to a Covid-19 vaccination or if they are especially vulnerable for the disease and should get vaccinated on a high priority.

Welcome to ERN-RND

your network for Rare Neurological Diseases in Europe

The ERN-RND is a European Reference Network established by the EU to support patients and families affected by rare neurological diseases (RND) which requires much specialised knowledge, treatment and resources.

Some diseases are so rare that the necessary knowledge might not be available in the patient’s nearest health centre or country. The patient doesn’t travel but knowledge does. Specific information about the diseases ERN-RND covers can be found in the Disease Knowledge section.

European Reference Networks (ERNs) are virtual networks connecting healthcare professionals around Europe with expertise in rare diseases which allows them to discuss a patient’s diagnosis and care, with their consent, via an online IT platform called the Clinical Patient Management System (CPMS).

ERN-RND unites 41 of Europe’s leading expert centres in 21 Member States and includes highly active patient organisations. Centres are located in Austria, Belgium, Bulgaria, Croatia, Czech Republic, Denmark, Estonia, Finland, France, Germany, Hungary, Italy, Latvia, Lithuania, Luxembourg, Malta, Netherlands, Poland, Slovenia, Spain and the UK.

These are the disease groups that the ERN-RND covers. By clicking on a box you will be taken to a page that gathers disease specific information collected by our network:

Video available in all EU languages and Norwegian, with or without subtitles here