ERN-RND webinars in collaboration with ERN EURO-NMD and EAN
ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.
Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.
Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
Recorded webinars: The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.
Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.
Next webinar organised by ERN-RND will be on:
13. September 2022 – Vanishing white matter
For your convenience you can import this ics file containing all ERN-RND/EURO-NMD webinar dates scheduled until 22.12.2022 in your calendar. Registration for individual webinars is still necessary!
|1. September 2022, 4 -5 pm CEST||Mitochondrial Epilepsy||Michelangelo Mancuso||Neurological Institute of the University of Pisa, Italy||EURO-NMD|
|13. September 2022, 3-4 pm CEST||Vanishing white matter||Marjo van der Knaap||Amsterdam University Medical Center, the Netherlands||ERN-RND|
|20. September 2022, 3-4 pm CEST||Tau-targeting Therapies: Where are we heading to?||Günter Höglinger||Hannover Medical School, Germany.||ERN-RND|
|21. September 2022, 4 -5 pm CEST||Mitochondrial Movement Disorders||Chiara la Morgia||Institute of Neurological Sciences of Bologna, Italy,||EURO-NMD|
|27. September 2022, 3-4 pm CEST||Clinical and genetic predictors of subthalamic nucleus deep brain stimulation in Parkinson's disease||Daniel Weiß||University of Tübingen, Germany||ERN-RND|
|29. September 2022, 4 -5 pm CEST||Mitochondrial optic neuropathies||Chiara la Morgia||Institute of Neurological Sciences of Bologna, Italy,||EURO-NMD|
|4. October 2022, 3-4 pm CEST||CACNA1A-related disorders: clinical presentation and therapeutic options||Elisabeta Indelicato||Medical University Innsbruck, Austria||ERN-RND|
|11. October 2022, 3-4 pm CEST||Krabbe disease – natural history and treatment option||Samuel Gröschel and Ingeborg Krägeloh-Mann||University Hospital Tübingen, Germany||ERN-RND|
|18.October 2022, 3-4 pm CEST||DBS in Dystonia – Targets, programming and therapeutic challenges||Philipp Capetian||University Hospital Würzburg, Germany||ERN-RND|
|25.October 2022, 3-4 pm CEST||VPS13A and XK bulk lipid transfer diseases (formerly the now obsolete Levine-Critchley syndrome)||Adrian Danek||University Hospital Munich, Germany||ERN-RND|
|08. November 2022, 3-4 pm CET||When is it appropriate to suspect a metabolic disorder in a child with chorea?||Juan Dario Ortigoza-Escobar||Sant Joan de Déu, Barcelona, Spain||ERN-RND|
|15. November 2022, 3-4 pm CET||Telerehabilitation in RND: an update||Luigi Lavorgna||University Luigi Vanvitelli, Neaples, Italy.||ERN-RND|
|22. November 2022, 3-4 pm CET||Use of Biomarkers to monitor the presymptomatic phase of Genetic FTD: research advances for clinical trial readiness||Dario Saracino and Harro Seelaar||Brain and Spine Institute, Paris, France; Erasmus MC- Rotterdam, the Netherlands||ERN-RND|
|29. November 2022, 3-4 pm CET||DBS in acquired dystonia||Anne Koy||University Hospital Cologne, Germany||ERN-RND|
|6. December 2022, 3-4 pm CET||Update in synuclein PET tracer development||Johannes Levin||University Hospital Munich, Germany.||ERN-RND|
Webinars from partner professional organisations
Webinars from other organisations
Ataxia Global Initiative
SJD Formación de Déu
06. September 2022, 3:00 pm (CEST)
Dr. Serena Galosi will participate as speakers. She will discuss the characteristics of movement disorders associated with these disorders. She will also discuss diagnosis and treatment of this disorders.
All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.
Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.