Webinars

Disease-Specific
Neuro­reha­bilitation
Advanced Therapies
Paediatric
Clinical Studies
Deep Brain Stimulation

ERN-RND webinars in collaboration with ERN EURO-NMD and EAN

ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.

Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

Recorded webinars:  The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.

 

Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

Next webinar organised by ERN-RND will be on:

   
Date Topic Speaker Institution ERN Focus
22 May 2025, 4 - 5 pm CEST FSHD webinar series – Episode 3: Pediatric FSHD  Tracey Willis Robert Jones and Agnes Hunt Orthopaedic and District Hospital NHS Trust, UK EURO-NMD
28 May 2025, 4 - 5 pm CEST FSHD webinar series – Episode 4: Clinical Trial Readiness Nicol Voermans & Ria de Haas Radboud University Nijmegen Medical Centre, the Netherlands EURO-NMD
16 September 2025, 4 - 5 pm CEST Neurological and non-neurological aspects in palliative care of FTD and PPA patients' Renate Wahl University Hospital Aachen, Germany ERN-RND
23 September 2025, 4 - 5 pm CEST Patient Journeys as working documents to identify gaps in care and adapt care pathways and better meet the needs of patients Petya Mihaylova and Mary Kearney Irish Consortium: Tallaght University Hospital and Children's Health Ireland & FARA Ireland ERN-RND
28 October 2025, 8am CET Scientific Symposium "European healthcare for RND patients" Different Speakers Part of the ERN-RND Annual Meeting Care-RND25 ERN-RND
11 November 2025, 8am CET Guidelines on the assessment and treatment of neurogenic urinary and sexual symptoms (NEUROGED Guidelines) Alessandra Fanciulli and Pietro Guaraldi Medical University Innsbruck, Austria & IRCCS - Institute of Neurological Sciences of Bologna, Italy ERN-RND

Webinars from partner professional organisations

Webinars from other organisations

All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.

Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.