ERN-RND webinars in collaboration with ERN EURO-NMD and EAN
ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.
Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.
Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
Recorded webinars: The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.
Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.
Next webinar organised by ERN-RND will be on:
Date | Topic | Speaker | Institution | ERN | Focus |
---|---|---|---|---|---|
21 November 2024, 4 - 5 pm CET | Muscle Pathology of Storage Diseases with Focus on Plyglucosan and Lipid Storage Myopathies | Anders Oldfors | University of Gothenburg, Sweden | EURO-NMD | |
26 November 2024, 3 - 4 pm CET | Differential Diagnosis aside from Neuroimaging for non-Leukodystrophy White Matter diseases | Nicole Wolf | Amsterdam Leukodystrophy Center, VUMC, Netherlands | ERN-RND | |
28 November 2024, 4 - 5 pm CET | Myopathology for muscular dystrophies | Edoardo Malfatti | Paris-Est AP-HP, France | EURO-NMD | |
5 December 2024, 4 - 5 pm CET | The role of muscle biopsy in inflammatory myopathies | Werner Stenzel | Charité – Universitätsmedizin, Berlin, Germany | EURO-NMD | |
12 December 2024, 4 - 5 pm CET | The role of biopsy in Congenital Myopathies | Norma Romero | Institute of Myology, Paris, France | EURO-NMD | |
19 December 2024, 4 - 5 pm CET | Novel approaches and future developments in Neuromuscular Pathology | Edoardo Malfatti | Paris-Est AP-HP, France | EURO-NMD | |
9 January 2025, 4 - 5 pm CET | The role of biopsy in Autophagic Myopathies | Teresinha Evangelista | Institute of Myology & Pitié Salpêtrière Hospital – AP-HP, Paris, France | EURO-NMD | |
16 January 2025, 4 - 5 pm CET | The role of biopsy in acquired myopathies, other than inflammatory myopathies | Sarah Leonard-Louis | Pitié Salpêtrière Hospital – AP-HP, Paris, France | EURO-NMD |
Webinars from partner professional organisations
Webinars from other organisations
All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.
Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.