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ERN-RND webinars in collaboration with ERN EURO-NMD and EAN

ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.

Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

Recorded webinars:  The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.

Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

Next webinar organised by ERN-RND will be on:

17 September 2024: The role of dopamine in the pathophysiology of the Allan-Herndon-Dudley syndrome/MCT8 deficiency’ by Nina Wilpert, Charité, Berlin

Date Topic Speaker Institution ERN Focus
17 September 2024, 3 - 4 pm CEST The role of dopamine in the pathophysiology of the Allan-Herndon-Dudley syndrome/MCT8 deficiency Nina Wilpert Charité, Berlin, Germany ERN-RND
24 September 2024, 3 - 4 pm CEST Clinical Neurophysiology in Dystonia Anke Snijders Radboud University Medical Center, Netherlands ERN-RND
22 October 2024, 3 - 4 pm CEST Neurogeriatric Aspects and Neurological aspects in Palliative Care of MSA, PSP and advanced PD Martin Klietz Hannover Medical School, Germany ERN-RND
05 November 2024, 3 - 4 pm CET Diagnostic Approach to Childhood-onset Chorea Juan Darío Ortigoza-Escobar Hospital Sant Joan de Déu, Barcelona, Spain ERN-RND
14 November 2024, 4 - 5 pm CET DBS in Dystonia - the network perspective Juho Joutsa Turku University Hospital ERN-RND
19 November 2024, 3 - 4 pm CET Autonomic dysfunction in movment disorders Pietro Guaraldi Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy ERN-RND

GENE THERAPY Webinar Series

The webinar series on Gene Therapy is co-organized by ERN-RND, EURO-NMD, ERN EpiCARE and the European Academy of Neurology (EAN), where we’ll delve into the latest advancements and breakthroughs in this interesting field. Look forward to cutting-edge research, clinical applications and successes, ethical considerations and future prospects as well as to expert discussions and Q&A Sessions.

Date Topic Speaker Institution ERN Focus
23 July 2024, 3 pm CEST Episode 12 Genetic therapies and therapy developments for rare movement disorders (HD, SCA) Willeke van Roon-Mom Leiden University Medical Center, the Netherlands   ERN-RND

Webinars from partner professional organisations

Webinars from other organisations

All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.

Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.