Webinars

Disease-Specific
Neuro­reha­bilitation
Advanced Therapies
Paediatric
Clinical Studies
Deep Brain Stimulation

ERN-RND webinars in collaboration with ERN EURO-NMD and EAN

ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.

Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

Recorded webinars:  The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.

Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

Next webinar organised by ERN-RND will be on: 

07. March 2023: ‘Towards precision medicine in NBIA’ by Manju Kurian, GOS Institute of Child Health, University College London, UK. SIGN UP here

2023

 

7. March 2023, 3 - 4 pm CETTowards precision medicine in NBIAManju KurianGOS Institute of Child Health, University College London, UK ERN-RND

 

Date Topic Speaker Institution ERN Focus
7. March 2023, 3 - 4 pm CET Towards precision medicine in NBIA Manju KurianGOS Institute of Child Health, University College London, UK ERN-RND
9. March 2023, 4 -5 pm CET Muscle hyperexcitability and cramps Federica Montagnese Friedrich Baur Institute, Ludwig Maximilians University, Munich, Germany EURO-NMD
14. March 2023, 3 -4 pm CET FTD- in whom, when and how genetic testing should be applied Laura Donker Kaat Erasmus Medical Center Rotterdam, Netherlands ERN-RND
6. April 2023, 4 -5 pm CET Inflammatory Myopathies Werner Stenzel Charité – Universitätsmedizin Berlin, Germany EURO-NMD
27. April 2023, 4 -5 pm CET Fatigue in Neuromuscular Disorders Nicole B.M. Voet Radboud University Medical Center, the Netherlands EURO-NMD
4. Mai 2023, 4 -5 pm CET Floppy child Ulrike Schara-Schmidt University Clinics Essen, Essen, Germany EURO-NMD
9. Mai 2023, 3 - 4 pm CET Non-pharmacological approaches to treatment in svPPA Ana Sofia Costa RWTH-University Hospital Aachen, Germany ERN-RND
23. Mai 2023, 3 - 4 pm CET Frontotemporal dementia vs. primary psychiatric disorders Tim van Langenhove University Hospital Ghent, Belgium ERN-RND
20. June 2023, 3 - 4 pm CET Haematopoietic Stem Cell Transplantion in Leukodystrophies Jörn-Sven Kühl University Hospital Leipzig, Germany ERN-RND
27. June 2023, 3 - 4 pm CET Huntington disease: new insights into molecular pathogenesis and therapeutic opportunities Sarah Tabrizi UCL Queen Square Institute of Neurology, London, UK ERN-RND
6. July 2023, 4 -5 pm CET Cardiac Involvement in Neuromuscular Diseases Karim Wahbi APHP Hospital Cochin, Paris, France EURO-NMD
12. September 2023, 3 - 4 pm CET Friedreich Ataxia Kathrin Reetz RWTH-University Hospital Aachen, Germany ERN-RND
26. September 2023, 3 - 4 pm CET Neuropsychological assessment in primary progressive aphasia – recommendations and pitfalls in clinical practice Lize Jiskoot Erasmus Medical Center Rotterdam, Netherlands ERN-RND
10. October 2023, 3 - 4 pm CET Advanced therapies and clinical trials in Leukodystrophies Caroline Sevin & Nicole Wolf Reference Centre for Leukodystrophies, University Hospital Bicetre, Paris, France & Amsterdam Leukodystrophy Center, VUMC- Amsterdam University Medical Centers, Netherlands ERN-RND
24. October 2023, 3 - 4 pm CET Newborn screening in leukodystrophies Lucia Laugwitz University Hospital Tübingen, Germany ERN-RND
9. November 2023, 4 -5 pm CET Pathology of Peripheral Nerves Joachim Weis University Hospital RWTH Aachen, Germany EURO-NMD

Webinars from partner professional organisations

Webinars from other organisations

Solve-RD

Ataxia Global Initiative

SJD Formación de Déu

European Huntington's Disease Network

All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.

Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.