ERN-RND webinars in collaboration with ERN EURO-NMD and EAN
ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.
Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.
Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
Recorded webinars: The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.
Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.
Next webinar organised by ERN-RND will be on:
10. October 2023: Advanced therapies and clinical trials in Leukodystrophies
Caroline Sevin & Nicole Wolf, Reference Centre for Leukodystrophies, University Hospital Bicetre, Paris, France & Amsterdam Leukodystrophy Center, VUMC- Amsterdam University Medical Centers, Netherlands
|10. October 2023, 3 - 4 pm CET||Advanced therapies and clinical trials in Leukodystrophies||Caroline Sevin & Nicole Wolf||Reference Centre for Leukodystrophies, University Hospital Bicetre, Paris, France & Amsterdam Leukodystrophy Center, VUMC- Amsterdam University Medical Centers, Netherlands||ERN-RND|
|17. October 2023, 3 - 4 pm CET||Neuro-ophthalmological presentations of rare neurometabolic diseases||Tatiana Brémovà-Ertl||Center for rare diseases, University Hospital Bern, Switzerland||ERN-RND|
|24. October 2023, 3 - 4 pm CET||Newborn screening in leukodystrophies||Lucia Laugwitz||University Hospital Tübingen, Germany||ERN-RND|
|9. November 2023, 4 -5 pm CET||Pathology of Peripheral Nerves||Joachim Weis||University Hospital RWTH Aachen, Germany||EURO-NMD|
|14. November 2023, 3 -4 pm CET||Diagnostic workup and prognostic implication for sleep disorders in atypical parkinsonisms||Giovanna Calandra Buonaura||University of Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy||ERN-RND|
|05. December 2023, 3 - 4 pm CET||Diagnostic workup for genito-urinary dysfunctions in atypical parkinsonism||Pietro Guaraldi||Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy||ERN-RND|
|postponed to 6 February 2024, 3 - 4 pm CET||Huntington disease: new insights into molecular pathogenesis and therapeutic opportunities||Sarah Tabrizi||UCL Queen Square Institute of Neurology, London, UK||ERN-RND|
|postponed||Neuropsychological assessment in primary progressive aphasia – recommendations and pitfalls in clinical practice||Lize Jiskoot||Erasmus Medical Center Rotterdam, Netherlands||ERN-RND|
Webinars from partner professional organisations
All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.
Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.