Mary Kearney, Friedreich’s Ataxia Research Alliance Ireland (FARA), Patient Advocate
Robert Rusina, Thomayer Teaching Hospital and Charles University in Prague, Czech Republic
Nataliya Grigorova, Bulgarian Huntington Association, ERN-RND ePAGs group coordinator
Johannes Levin, Department of Neurology, Ludwig-Maximilians-University Munich, Germany
Bart van de Warrenburg, Radboud university medical center, Nijmegen, the Netherlands
Astri Arnesen, President of the European Huntington Association
Juan Darío Ortigoza-Escobar, Hospital Sant Joan de Déu, Barcelona, Spain
Annemieke Buizer, Emma Children’s Hospital/Amsterdam University Medical Centers, the Netherlands
Nicole Wolf, Emma Children’s Hospital/Amsterdam University Medical Centers, the Netherlands
Fran Borovečki, University Hospital Center Zagreb, Zagreb, Croatia
Sylvia Boesch, University Hospital Innsbruck, Austria
Bélen Perez Dueñas, Hospital Vall d’Hebrón, Barcelona, Spain
Jorik Nonnekes, Radboud University Medical Centre, the Netherlands
Samuel Gröschel, University Children’s Hospital, Tübingen, Germany
Yaroslau Compta, Hospital Clínic de Barcelona, Spain
Sophie Bernichtein, Brain-Team, France
Ginevra Zanni, Bambino Gesù Children’s Hospital, Rome, Italyzeltner
Lena Zeltner, University Hospital Tübingen, Germany
Cathalijne van Doorne, former ataxia patient advocate
Monika Benson, Dystonia Europe
You are an ERN-RND full member or affiliated partner and would like to participate? Please contact us.