EXPERT CENTRES for Rare Neurological Diseases
You will find below the expert centres in rare neurological diseases across Europe that are part of the ERN-RND network. These RND expert centres have been approved by their respective national healthcare authorities and have been thoroughly assessed during the ERN application process.
The network is currently composed of 64 full members and 4 Affiliated Partners from 24 countries. Please note that we are currently going through an expansion process and will soon cover all of Europe.
General information and contact details of the ERN-RND centres can be found at Orphanet, the portal for rare diseases and orphan drugs.
Full Members & Affiliated Partners
| Disease | Country | Name | Unit |
|---|---|---|---|
| Atypical Parkinsonian Syndromes: Genetic PD, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation | Austria | University Hospital Innsbruck (Full Member) | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias | Belgium | Antwerp University Hospital (Full Member) | Adult |
| Frontotemporal Dementia,Leukodystrophies | Belgium | Ghent University Hospital (Full Member) | Adult/Pediatric |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation | Bulgaria | University Neurological Hospital “St. Naum” (Full Member) | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Leukodystrophies, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Croatia | Klinicki bolnički centar Zagreb (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia | Czech Republic | Motol University Hospital (Full Member) | Adult |
| Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Czech Republic | General University Hospital in Prague (Full Member) | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Denmark | Aarhus University Hospital (Full Member) | Adult/Pediatric |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Leukodystrophies, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Denmark | Rigshospitalet Copenhagen (Full Member) | Adult/Pediatric |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Estonia | Tartu University Hospital (Affiliated Partner) | Adult |
| Leukodystrophies | Estonia | Tartu University Hospital (Affiliated Partner) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia | France | Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salpêtrière (Full Member) | Adult |
| Choreas and Huntington's Disease | France | Assistance Publique-Hôpitaux de Paris, Hôpital Henri-Mondor (Full Member) | Adult |
| Leukodystrophies | France | Assistance Publique-Hôpitaux de Paris, Hôpital Robert-Debré (Full Member) | Adult/Paediatric |
| Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | France | CHU de Bordeaux (Full Member) | Adult |
| Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | France | CHU de Toulouse (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Germany | Universitätsklinikum Bonn (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Germany | Universitätsklinikum Schleswig-Holstein (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration, Leukodystrophies | Germany | LMU Klinikum, Munich (Full Member) | Adult/Paediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Germany | Universitätsklinikum Tübingen (Full Member) | Adult |
| Leukodystrophies, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration , Frontotemporal Dementia | Germany | Universitätsklinikum Tübingen (Full Member) | Adult/Paediatric |
| Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration , Frontotemporal Dementia | Germany | Universitätsklinikum Ulm (Full Member) | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Hungary | University of Pécs (Full Member) | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Hungary | Semmelweis University (Full Member) | Adult |
| Leukodystrophies | Hungary | Semmelweis University (Full Member) | Adult/Paediatric |
| Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia | Italy | Foundation IRCCS neurological institute Carlo Besta, Milan (Full Member) | Adult |
| Leukodystrophies | Italy | Foundation IRCCS neurological institute Carlo Besta, Milan (Full Member) | Adult/Paediatric |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease | Italy | IRCCS Clinical Institute Humanitas, Milan (Full Member) | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Leukodystrophies | Italy | Pediatric Hospital Bambino Gesù, Rome, Italy(Full Member) | Pediatric |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Italy | AOU Siena | Adult |
| Leukodystrophies | Italy | AOU Siena (Full Member) | Adult/Paediatric |
| Choreas and Huntington's Disease | Malta | Mater Dei Hospital (Affiliated Partner) | Adult |
| Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia, Leukodystrophies | Latvia | Pauls Stradins Clinical University Hospital, Riga (Affiliated Partner) | Adult |
| Choreas and Huntington's Disease | Lithuania | Vilnius University Hospital Santariškių Klinikos (Full Member) | Adult |
| Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia, Leukodystrophies | Luxembourg | Centre Hospitalier de Luxembourg (Affiliated Partner) | Adult |
| Leukodystrophies | Netherlands | VU University Medical Center Amsterdam (Full Member) | Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Leukodystrophies | Netherlands | University Medical Center Groningen (Full Member) | Pediatric |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Netherlands | Radboud University Medical Center, Nijmegen (Full Member) | Pediatric |
| Frontotemporal Dementia | Netherlands | Erasmus MC, Rotterdam (Full Member) | Pediatric |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation,Cerebellar Ataxia and Hereditary Spastic Paraplegias, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Poland | University Hospital in Krakow (Full Member) | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Slovenia | University Medical Centre Ljubljana (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Dystonias | Spain | Hospital Sant Joan de Déu Barcelona (Full Member) | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation | Spain | Hospital Sant Joan de Déu Barcelona | Adult/Paediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Spain | Hospital Clínic i Provincial de Barcelona (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias | Spain | Hospital Universitari Vall d'Hebron (Full Member) | Adult |
| Atypical Parkinsonian Syndromes: Genetic PD, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation,Leukodystrophies | Cyprus | The Cyprus Foundation for Muscular Dystrophy Research (The Cyprus Institute of Neurology and Genetics) (Full Member) | Adult/Pediatric |
| Frontotemporal Dementia, Leukodystrophies | Czech Republic | Thomayer Hospital (Full Member) | Adult/Pediatric |
| Frontotemporal Dementia, Choreas and Huntington's Disease, Dystonias, Atypical Parkinsonian Syndromes: Genetic PD | Czech Republic | Fakultní nemocnice U Sv. Anny v Brně (Full Member) | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Leukodystrophies, Atypical Parkinsonian Syndromes: Genetic PD | Germany | Hannover Medical School (Full Member) | Adult/Pediatric |
| Atypical Parkinsonian Syndromes: Genetic PD, Choreas and Huntington's Disease, Dystonias, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD | Germany | Uniklinik RWTH Aachen | Adult/Pediatric |
| Choreas and Huntington's Disease | Germany | Katholisches Klinikum Bochum | Adult/Pediatric |
| Choreas and Huntington's Disease, Dystonias, Atypical Parkinsonian Syndromes: Genetic PD | Germany | Universitätsklinikum Würzburg (Full Member) | Adult/Pediatric |
| Atypical Parkinsonian Syndromes: Genetic PD,Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Frontotemporal Dementia | Spain | Hospital Universitario Central de Asturias (Full Member) | Adult |
| Choreas and Huntington's Disease, Dystonias,Atypical Parkinsonian Syndromes: Genetic PD | Spain | Complejo Hospitalario Regional Virgen del Rocío (Full Member) | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia | Spain | Hospital Universitario Marqués de Valdecilla (Ful Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease,Dystonias, Frontotemporal Dementia,Leukodystrophies,Atypical Parkinsonian Syndromes: Genetic PD | Spain | Hospital Universitario La Paz | Adult/Pediatric |
| Atypical Parkinsonian Syndromes: Genetic PD, Dystonias | Spain | Hospital Clinico San Carlos, Madrid (Full Member) | Adult |
| Choreas and Huntington's Disease, Dystonias, Atypical Parkinsonian Syndromes: Genetic PD | Spain | Hospital General Universitario Gregorio Marañón (Full Member) | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Frontotemporal Dementia, Leukodystrophies, Atypical Parkinsonian Syndromes: Genetic PD | Finland | Northern Ostrobothnia Hospital District Oulu (Full Member) | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Frontotemporal Dementia | Greece | Eginition Hospital, National and Kapodistrian University of Athens | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, | Hungary | Szent-Györgyi Albert Medical Center, University of Szeged | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Atypical Parkinsonian Syndromes: Genetic PD | Ireland | Tallaght University Hospital | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias | Italy | AOU Pisana Pisa | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Frontotemporal Dementia, Leukodystrophies,Atypical Parkinsonian Syndromes: Genetic PD | Italy | AO di Padova | Adult |
| Choreas and Huntington's Disease | Italy | AOU Policlinco Bari | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD | Italy | Azienda Ospedaliera Universitaria Federico II Napoli | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias,Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD | Italy | UOCD Clinica Neurologica Rete Metropolitana NEUROMET Bologna | Adult |
| Choreas and Huntington's Disease | Netherlands | Maastricht University Medical Center+ | Pediatric |
| Choreas and Huntington's Disease | Netherlands | Leiden University Medical Center | Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD | Sweden | Karolinska Universitetssjukhuset (Full Member) | Adult/Pediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias | Poland | Institute of Psychiatry and Psychology Warsaw | Adult/Pediatric |
| Choreas and Huntington's Disease | Sweden | Centre for Huntington’s Disease Sweden (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias | Belgium | Université libre de Bruxelles (Full Member) | Adult |
| Choreas and Huntington's Disease, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD | Belgium | University Hospitals Leuven (Full Member) | Adult |
| Atypical Parkinsonian Syndromes: Genetic PD | France | Reference Center (associated center) for Rare Multiple System Atrophy (Bordeaux) (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Dystonias | France | Reference Centre for Rare Diseases 'Neurogenetics', Paris (Full Member) | Adult |
| Frontotemporal Dementia | France | Reference centre for rare dementias (Paris) | Adult |
| Choreas and Huntington's Disease | France | Reference centre for Huntington's disease (Paris) (Full Member) | Adult |
| Atypical Parkinsonian Syndromes: Genetic PD | France | Reference Center for Rare MultipleSystem Atrophy diseases (Toulouse) (Full Member) | Adult |
| Leukodystrophies | France | APHP - Reference Centre for Leukodystrophies (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD | Germany | University of Lübeck (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Frontotemporal Dementia, Leukodystrophies, Atypical Parkinsonian Syndromes: Genetic PD | Italy | Istituto Neurologico Carlo Besta, Milan (Full Member) | Adult |
| Choreas and Huntington's Disease, Dystonias, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD, | Italy | Istituto Clinico Humanitas di Rozzano, Milan (Full Member) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Frontotemporal Dementia, Leukodystrophies, Atypical Parkinsonian Syndromes: Genetic PD | Italy | Azienda ospedaliera Universitaria Senese, Siena (Full Member) | Adult |
How to contact ERN-RND expert centres
You will find the contact details of our ERN-RND Expert Centres here.
Supporting partners
Is your hospital interested to collaborate with ERN-RND? If it is located in a European country not yet represented within ERN-RND , you can apply for your hospital to become a supporting partner.
For more information, please contact Carola Reinhard.
Videos from our members
In 2021, some of our members recorded a video to introduce themselves. You can find these members named on the map below. Click on the city names to view the videos. The locations of our other members are also included on this map.
If you want to be included, send us your introductory video!
