Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)

About the Page
The Cerebellar Ataxia & Hereditary Spastic Paraplegias Disease Knowledge Page provides reference information on care of cerebellar ataxia and hereditary spastic paraplegias.

Information and knowledge that has been developed or endorsed by ERN-RND is found in the blue boxes.

Care Standards - Clinical Rating Scales

Clinical Rating Scales for Cerebellar Ataxia

Scale for the assessment and rating of ataxia (SARA)

Clinical Rating Scales for Hereditary Spastic Paraplegias

The Spastic Paraplegias Rating Scale (SPRS)

Scales to measure HSP in children before adolescence

Care Standards - Guidelines

Management of the ataxias: towards best clinical practice

Summary of primary care by Ataxia UK

Consensus clinical management guidelines for Friedreich’s Ataxia

Care Standards - Diagnosis

Diagnostic flowchart for Ataxia

Diagnostic flowchart for early-onset Ataxias

Diagnostic flowchart for Hereditary Spastic Paraplegias (HSPs)

Patient Journey

Patient Journey Friedreich's Ataxia

Patient Journey Hereditary Spastic Paraplegias (HSPs)

Information for patients - endorsed by ERN-RND

General ataxia leaflet

Muscle tightness & stiffness - "spasticity" in ataxia

patient information leaflet on FA 13-17 years old adolescents

patient information leaflet on FA for 13-17 year old adolescents

Patient information leaflet on FA for 4-11 years old

Patient registries to which ERN-RND members contribute

Clinical studies & trials

Further useful links, training resources, evidence and publications


Patient information

Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.