Patient information – Cerebellar Ataxia & HSPs – Adult & Paediatric

Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.

Disease specific patient education handouts by the Movement Disorders Society

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• Dutch

• Ataxia by Radboud UMC, Nijmegen
• HSP by Radboud UMC, Nijmegen

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• English

• What is ataxia? by Ataxia UK
• Living with Friedreich’s Ataxia by FARA

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• French

• What is Friedreich’s Ataxia? by L’Association Française de l’Ataxie de Friedreich (AFAF)

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• German

• Der HSP-Ratgeber by HSP Selbsthilfegruppe Deutschland e.V.
• Ataxie by Deutsche Heredo-Ataxie-Gesellschaft e.V.
• What is Friedreich’s Ataxia? by Friedreich Ataxie Förderverein e.V. (FAFVeV)
• What is Friedreich’s Ataxia? by Association suisse de l’Ataxie de Friedreich
• What is Friedreich’s Ataxia? by Associazione Italiana per la lotta alle Sindromi Atassiche (A.I.S.A.)

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• Spanish

• What is Ataxia? by Federación de Ataxias de España (FEDAES)
• What is Friedreich’s Ataxia? by MedlinePlus