Patient information – Cerebellar Ataxia & HSPs – Adult & Paediatric

Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.

Multiple languages (41):

• Disease specific patient education handouts by the Movement Disorders Society
  • Ataxia
  • Hereditary ataxia

Dutch language:

• Ataxia by Radboud UMC, Nijmegen
• HSP by Radboud UMC, Nijmegen

English language:

• What is ataxia? by Ataxia UK
• Living with Friedreich’s Ataxia by FARA

French language:

• What is Friedreich’s Ataxia? by L’Association Française de l’Ataxie de Friedreich (AFAF)

German language:

• Der HSP-Ratgeber by HSP Selbsthilfegruppe Deutschland e.V.
• Ataxie by Deutsche Heredo-Ataxie-Gesellschaft e.V.
• What is Friedreich’s Ataxia? by Friedreich Ataxie Förderverein e.V. (FAFVeV)
• What is Friedreich’s Ataxia? by Association suisse de l’Ataxie de Friedreich
• What is Friedreich’s Ataxia? by Associazione Italiana per la lotta alle Sindromi Atassiche (A.I.S.A.)

Spanish language:

• What is Ataxia? by Federación de Ataxias de España (FEDAES)
• What is Friedreich’s Ataxia? by MedlinePlus