Frontotemporal Dementia

The Frontotemporal Dementia Disease Knowledge Page provides reference information on care of frontotemporal dementia.Patient Journey Stories of our Patient Representatives

Disease Knowledge Documents

Information and knowledge that has been developed or endorsed by ERN-RND can be found in blue boxes.

Defintion

Full definition of Frontotemporal Dementia

ERN-RND Centres for Frontotemporal Dementia

Centres and contact details for Frontotemporal Dementia

Care Standards

Available in many European languages .

Diagnosis

Diagnosis of primary progressive aphasia suptypes in FTD patients

Languages

Clinical Rating Scales

Clinical rating scale for frontotemporal dementia

Languages

Guidelines

Pharmacotherapy of behavioural manifestations in FTD

Languages

Online Medical Education

Webinar recordings

Information for Patients

Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.

Adult
Video on Genetics and Inheritance

Patient Organisations

Frontotemporal Dementia Patient Organisations

Clinical Studies and Trials

Clinical Studies and Trials – Frontotemporal Dementia

Further Useful Links, Training Resources, Evidence and Publications

Frontotemporal Dementia