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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Patient information – Frontotemporal dementia – Adult

Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.

Multiple languages:

  • Disease specific patient education handouts by the Movement Disorders Society

German language:

  • DESCRIBE-FTD – Klinische Registerstudie zu Frontotemporaler Demenz by Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE)

     

Webinar Schedule

Latest News

  • TIME TO ACT – IMPROVING RARE DISEASE DIAGNOSIS AND SOLVING THE UNSOLVED RARE DISEASE THROUGH COLLABORATION IN EUROPE

    May 11, 2023
    The Solve-RD consortium and associated European Solve-RD network, including among others six European Reference Networks, EURORDIS, Orphanet and leading European …read more »
  • 35th Annual Meeting EACD

    May 10, 2023
    The 35th Annual Meeting EACD “to be held between 24 – 27 May 2023 in Ljubljana, Slovenia, hosted by University …read more »
  • 12th EURORDIS Black Pearl Awards Ceremony: recording online

    March 6, 2023
    After 2 years online, it has been an absolute pleasure to gather together again to celebrate our amazing awardees with over …read more »

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ERN-RND European Reference Network for Rare Neurological Diseases

Latest Events

  • Samuel Belzberg 6th International Dystonia Symposium

    June 3, 2023
    1-3 June 2023, Dublin Hear from expert faculty as they discuss and debate cutting edge dystonia research. With over sixty …read more »
  • 2023 Euromit

    June 15, 2023
    11-15 June 2023, Bologna In the tradition of this meeting, the intent is to encourage the participation of diverse professional …read more »
  • GNAO1 European Conference 2023

    June 17, 2023
    The third edition of the GNAO1 European Conference, 16-17 June, Rome, Italy Two days entirely dedicated to the ultra-rare disease …read more »

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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