ERN-RND has a ‘multi-tiered hub structure’ so that it can accommodate the member healthcare provider, associated and collaborative members as well as the existing research networks and the learned societies. This means that although a limited number of health care providers will be members of the network, more centres and clinicians will be able to access the expertise of the ERN, submit patients etc.
This structure allows the collaboration with the learned societies and research networks avoiding duplication of efforts in areas like education/teaching; registries; bio banking and care guidelines among others.
The ERN is required to have to have a board of the ERN that should be established in accordance with what is stipulated in the operational criteria. It should include one representative from each healthcare provider that is a full member of the ERN. There will be a coordinator of the ERN nominated by the coordinating centre.
- Governance (missing)
- Management Team
- ePAG representatives
- Working groups
List and leader
- Disease groups
List and coordinators
- Results and publications
The work plan of ERN-RND of the first five years (March 2017 till February 2022) is depicted in the Gantt Chart below.