EXPERT CENTRES for Rare Neurological Diseases
You will find below the expert centres in rare neurological diseases across Europe that are part of the ERN-RND network. These RND expert centres have been approved by their respective national healthcare authorities and have been thoroughly assessed during the ERN application process.
The network is currently composed of 32 full members and 10 Affiliated Partners from 21 countries. Please note that we are currently going through an expansion process and will soon cover all of Europe.
General information and contact details of the ERN-RND centres can be found at Orphanet, the portal for rare diseases and orphan drugs.
Full Members & Affiliated Partners
| Disease | Country | Name | Unit |
|---|---|---|---|
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia, Leukodystrophies, Choreas and Huntington's Disease | Austria | Medical University Innsbruck (Affiliated Partner) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation | Austria | Medical University Vienna (Affiliated Partner) | Paediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias | Belgium | Université libre de Bruxelles, Hôpital Erasme | |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Belgium | University Hospitals Leuven | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation | Bulgaria | University Neurological Hospital “St. Naum” | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Leukodystrophies, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Croatia | University Hospital Centre Zagreb (Affiliated Partner) | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias | Czech Republic | Motol University Hospital | |
| Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Czech Republic | General University Hospital in Prague | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Denmark | Aarhus University Hospital (Affiliated Partner) | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Estonia | Tartu University Hospital (Affiliated Partner) | Adult |
| Leukodystrophies | Estonia | Tartu University Hospital (Affiliated Partner) | Paediatric |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Finland | Oulu University Hospital (Affiliated Partner) | Adult |
| Leukodystrophies | Finland | Oulu University Hospital (Affiliated Partner) | Paediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia | France | Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salpêtrière | Adult |
| Choreas and Huntington's Disease | France | Assistance Publique-Hôpitaux de Paris, Hôpital Henri-Mondor | Adult |
| Leukodystrophies | France | Assistance Publique-Hôpitaux de Paris, Hôpital Robert-Debré | Paediatric |
| Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | France | CHU de Bordeaux | Adult |
| Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | France | CHU de Toulouse | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Germany | Universitätsklinikum Bonn | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Germany | Universitätsklinikum Schleswig-Holstein | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Germany | LMU Klinikum, Munich | Adult |
| Leukodystrophies | Germany | LMU Klinikum, Munich | Paediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Germany | Universitätsklinikum Tübingen | Adult |
| Leukodystrophies | Germany | Universitätsklinikum Tübingen | Paediatric |
| Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration , Frontotemporal Dementia | Germany | Universitätsklinikum Ulm | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Hungary | University of Pécs | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Hungary | Semmelweis University | |
| Leukodystrophies | Hungary | Semmelweis University | Paediatric |
| Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia | Italy | Foundation IRCCS neurological institute Carlo Besta, Milan | Adult |
| Leukodystrophies | Italy | Foundation IRCCS neurological institute Carlo Besta, Milan | Paediatric |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease | Italy | IRCCS Clinical Institute Humanitas, Milan | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Leukodystrophies | Italy | Bambino Gesù Ospedale Pediatrico | Paediatric |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Frontotemporal Dementia, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Italy | AOU Siena | Adult |
| Leukodystrophies | Italy | AOU Siena | Paediatric |
| Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia, Leukodystrophies | Latvia | Pauls Stradins Clinical University Hospital, Riga (Affiliated Partner) | Adult |
| Choreas and Huntington's Disease | Lithuania | Vilnius University Hospital Santariškių Klinikos | |
| Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Frontotemporal Dementia, Leukodystrophies | Luxembourg | Centre Hospitalier de Luxembourg (Affiliated Partner) | Adult |
| Leukodystrophies | Netherlands | VU University Medical Center Amsterdam | Paediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Leukodystrophies | Netherlands | University Medical Center Groningen | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Netherlands | Radboud University Medical Center, Nijmegen | Adult |
| Frontotemporal Dementia | Netherlands | Erasmus MC, Rotterdam | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation,Cerebellar Ataxia and Hereditary Spastic Paraplegias, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Poland | University Hospital in Krakow | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Slovenia | University Medical Centre Ljubljana | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Spain | Hospital Sant Joan de Déu Barcelona | Adult |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation | Spain | Hospital Sant Joan de Déu Barcelona | Paediatric |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | Spain | Hospital Clínic i Provincial de Barcelona | Adult |
| Cerebellar Ataxia and Hereditary Spastic Paraplegias | Spain | Hospital Universitari Vall d'Hebron | |
| Dystonias, Paroxysmal disorders (non-epiletical ones), Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxia and Hereditary Spastic Paraplegias, Choreas and Huntington's Disease, Frontotemporal Dementia, Atypical Parkinsonian Syndromes: Genetic PD, Multiple System Atrophy, Progressive Supranuclear Palsy/Corticobasal degeneration | UK | University College London Hospitals NHS Foundation Trust (Permanent guest status) | Adult |
| Leukodystrophies | UK | University College London Hospitals NHS Foundation Trust (Permanent guest status) | Paediatric |
How to contact ERN-RND expert centres
You will find the contact details of our ERN-RND Expert Centres here.