Multiple System Atrophy

This page provides information on multiple system atrophy for which most of it has been endorsed by ERN-RND members. It is structured as follows:

  • Definition
  • ERN-RND centres
  • Diagnosis
  • Care standards
  • Clinical studies & trials
  • Registries
  • Patient organisations
  • Study groups & networks
  • Useful links, training resources, evidence and publications
  • CPMS use case

ERN-RND centres

Diagnosis

  • ERN-RND approved diagnostic flowcharts

Care Standards

Clinical studies & Trials

  • Clinical trials at ERN-RND centres
  • International clinical studies & trials
    ClinicalTrials.gov

Registries

  • Registries to which ERN-RND partners contribute
  • Other registries

Patient organisations

Patient organisations are non-profit organisations which are patient-focused where patients and/or carers represent a majority of members in governing bodies (European Medicines Agency, 2014). Herewith, we provide a list of national and European patient organisations that work in the disease area that is covered by ERN-RND.

See all patient organisations

Study Groups & networks

The listed  study groups and disease networks are external networks and groups, which are leaders in the field of research for these disease groups. ERN-RND’s work is based on and complimentary to the work being done by these networks.

See all study groups and disease networks

Useful links, training resources, evidence and publications

CPMS use case

We organise e-case meetings on multiple system atrophy  in order to discuss diagnostically unclear and complex cases with Atypical Parkinsonism.

Find out more about the CPMS here