This page provides information on chorea & huntington's disease for which most of it has been endorsed by ERN-RND members. It is structured as follows:
- ERN-RND centres
- Care standards
- Clinical studies & trials
- Patient organisations
- Study groups & networks
- Useful links, training resources, evidence and publications
- CPMS use case
- ERN-RND approved diagnostic flowcharts
- ERN-RND recommended disease rating scales
- ERN-RND endorsed guidelines
Patient organisations are non-profit organisations which are patient-focused where patients and/or carers represent a majority of members in governing bodies (European Medicines Agency, 2014). Herewith, we provide a list of national and European patient organisations that work in the disease area that is covered by ERN-RND.
Study Groups & networks
The listed study groups and disease networks are external networks and groups, which are leaders in the field of research for these disease groups. ERN-RND’s work is based on and complimentary to the work being done by these networks.