Progressive Supranuclear Palsy

This page provides information on progressive supranuclear palsy for which most of it has been endorsed by ERN-RND members. It is structured as follows:

  • Definition
  • ERN-RND centres
  • Diagnosis
  • Care standards
  • Clinical studies & trials
  • Registries
  • Patient organisations
  • Study groups & networks
  • Useful links, training resources, evidence and publications
  • CPMS use case

Definition

ERN-RND centres

We provide the list of progressive supranuclear centres, members of ERN-RND, as well as the contact details of medical experts.

See all ERN-RND centres.

Diagnosis

  • ERN-RND approved diagnostic flowcharts

Care Standards

Clinical studies & Trials

  • Clinical trials at ERN-RND centres
  • International clinical studies & trials
    ClinicalTrials.gov

Registries

Patient organisations

Patient organisations are non-profit organisations which are patient-focused where patients and/or carers represent a majority of members in governing bodies (European Medicines Agency, 2014). Herewith, we provide a list of national and European patient organisations that work in the disease area that is covered by ERN-RND.

See all patient organisations.

Study Groups & networks

The listed study groups and disease networks are external networks and groups, which are leaders in the field of research for these disease groups. ERN-RND’s work is based on and complimentary to the work being done by these networks.

See all study groups and disease networks.

Useful links, training resources, evidence and publication

CPMS use case

Find out more about the CPMS here