Last December’s High Level Meeting on a European Innovation and Care Ecosystem for Rare and Complex Diseases brought together policymakers, researchers, healthcare professionals, industry and the patient advocacy to help shape the future of rare disease policy in Europe.
This collective effort culminated in the Declaration on the EU Innovation and Care Ecosystem for Rare and Complex Diseases—a bold commitment to building a sustainable research and innovation ecosystem, supported by dedicated funding.
We, alongside many other European Reference Networks, have signed this Declaration and will actively work towards advancing its goals within our remit.