Belgium
Université Libre de Bruxelles, Hôpital Erasme
Contact: Prof. Massimo PANDOLFO
Phone: +32 02 555 34 29
Email: Massimo.Pandolfo@ulb.ac.be
University Hospitals Leuven
Contact: Prof.Kristl CLAEYS
Phone: +3216344280
Email: kristl.claeys@uzleuven.be
Czech Republic
Motol University Hospital
Contact: Martin VYHNÁLEK, MD, Ph.D.
Phone: +420 22443 6880
Email: vyhnalek@gmail.com
France
Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salepétrière
Contact: Prof. Alexandra DURR
Phone: +33 (0)1 42 16 1346 or +33 (0)1 57 27 45 31
Email: elodie.petit@icm-institute.org and alexandra.durr@aphp.fr
Germany
University Hospital Tübingen
HSP Clinic, Zentrum für Seltene Erkrankungen (ZSE) Tübingen
Behandlungs und Forschungszentrum für Seltene Erkrankungen ZSE Tübingen
Contact: PD Dr Rebecca SCHÜLE, Prof. Ludger SCHÖLS
Phone: +49 (0)7071 29 85653
Email: rebecca.schuele-freyer@uni-tuebingen.de and ludger.schoels@uni-tuebingen.de
University Hospital Tübingen (Children’s Hospital)
Zentrum für Seltene Erkrankungen (ZSE) Tübingen
Behandlungs- und Forschungszentrum für Seltene Erkrankungen ZSE Tübingen
Head of clinic: Prof. Ingeborg KRÄGELOH-MANN
Phone: +49 (0)7071 29 85170
Email: ingeborg.kraegeloh-mann@med.uni-tuebingen.de
University Hospital Bonn (UKB)
Zentrum für Seltene Erkrankungen (ZSE) Bonn (ZSEB)
Contact: Prof. Thomas KLOCKGETHER
Phone: +49 (0)228 287 15736
Email: klockgether@uni-bonn.de
University Hospital Schleswig-Holstein – Campus Lübeck
Lübecker Zentrum für seltene Erkrankungen (ZSE)
Contact: Prof. Alexander MÜNCHAU
Phone: +49 (0)451 3101 8213
Email: alexander.muenchau@neuro.uni-luebeck.de
University Hospital Munich (LMU)
Contact: Prof. Thomas KLOPSTOCK
Email: thomas.klopstock@med.uni-muenchen.de
Phone: +49 (0)89/4400-57400
Hungary
Semmelweis University
Outpatient Clinic of Rare Disorders
Genetics Laboratory, Institute of Genomic Medicine and Rare Disorders,
Contact: Prof. Maria Judit MOLNAR
Phone: +36 1 459 1492
Email: molnar.mariajudit@med.semmelweis-univ.hu
University of Pécs Medical School
Contact: Dr Norbert KOVÁCS
Phone: 37644
Email: kovacs.norbert@pte.hu
Italy
Foundation IRCCS neurological institute Carlo Besta , Milan
Contact: Dr Caterina MARIOTTI
Phone: +39 02 23942269
Email: caterina.mariotti@istituto-besta.it
Azienda Ospedaliero-Universitaria Siena
Contact: Prof. Antonio Federico
Phone: +39 0577 585763 – 233222
Email: federico@unisi.it
Pediatric hospital Bambino Gesù, Rome
Unità di Malattie Neuromuscolari e Neurodegenerative – Laboratorio di Medicina Molecolare
Dipartimento di Neuroscienze e Neuroriabilitazione
Head of clinic: Prof. Enrico S. BERTINI
Phone: +39 06 68592105
Email: enricosilvio.bertini@opbq.net
Netherlands
University Medical Center Groningen (UMGC)
Expert Centre for Movement Disorders
Polikliniek Neurologie
Phone: +31 (0)50 361 3500
Email: m.veldthuis@umcq.nl
Radboud University Medical Center Nijmegen (Radboudumc)
Centre for Genetic Movement Disorders
Afdeling Neurologie
Contact: Dr B.P.C. Bart VAN DE WARRENBURG
Phone: +31 (0)24 361 6600
Email: administratie.neuro@radboudumc.nl
Poland
University Hospital Krakow, Rare Neurologic Diseases Clinic
Oddzial Kliniczny Neurologii, Szpital Uniwersytecki w Krakowie
Contact: Prof. Joanna PERA
Phone: +48 12 4248600
Email: neurologia@cm-uj.krakow.pl
Slovenia
University Medical Centre Ljubljana
Contact: Prof. Borut PETERLIN
Phone: +386 1 5401 137
Email: borut.peterlin@guest.arnes.si
Spain
Hospital Clínic i Provincial de Barcelona y Hospital de Sant Joan de Déu
CSUR – National unit of expertise for hereditary ataxias and paraplegias
Servicio de Neurología
Contact: Andrés NASCIMENTO OSORIO
Phone: +34 93 253 21 00
Email: anascimento@sjdhospitalbarcelona.org
Hospital Universitari Vall d’Hebron, Barcelona
CSUR – National unit of expertise for hereditary ataxias and paraplegias (adults)
Unidad Neuromuscular
Contact: Dr Alfons MACAYA
Phone: +34 932746000
Hospital Universitari General Vall d’Hebron, Barcelona
CSUR – National unit of expertise for hereditary ataxias and paraplegias (children)
Sección de Neurología Pediátrica
Contact: Dr Alfons MACAYA
Phone: +34 93 489 31 56
Email: neurologia.pediatrica@vhebron.net
UK
University College London Hospitals NHS Foundation Trust
Ataxia, Hereditary Spastic Paraplegia
National Hospital for Neurology, Queen Square
Contact: Prof. Paola GIUNTI
Phone: +44 845 155 5000
Email: p.giunti@ucl.ac.uk