Clinical Rating Scales
Gross-Motor Function Classification for Metachromatic Leukodystrophie (MLD)
Guidelines
Minimal requirements for MRI data
International recommendations for the diagnosis and management of patients with Adrenoleukodystrophy (ALD)
Consensus-Based Expert Recommendations for Diagnosis and Clinical Management of Vanishing White Matter
Diagnosis
Diagnostic Flowchart for Leukodystrophies
Information for Patients – Endorsed by ERN-RND
Vanishing White Matter Patient Management Card
Established by Vanishing White Matter (VWM) experts from the VWM consortium, other experts, and patient advocates from the VWM Families Foundation (VWMFF), United Leukodystrophy Foundation (ULF), and Volwassenen, Kinderen en Stofwisselingsziekten (VKS)