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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Disease Group: Atypical Parkinsonism

Recent Advances in Clinical Trials in Multiple System Atrophy

20 May 2025 | 3 – 4 pm CEST
Zoom Registration

Speaker: David Bendetowicz
CHU – Reference Center for Rare Multiple System Atrophy, University Hospital Bordeaux, France

Recording

Slides

Introduction – systematics of non-neurological aspects

Winter school 2025 “Challenges of treating rare neurological diseases”
14 Mar. 2025

Speaker: Michèl Willemsen
Radboudumc, Nijmegen, The Netherlands

Recording

Treatment of nano-rare neurological diseases

Winter school 2025 “Challenges of treating rare neurological diseases”
12 Mar. 2025

Speaker: Marlen Lauffer
Leiden University Medical Center​, The Netherlands

Recording

Treatment of Aromatic l-amino acid decarboxylase (AADC) deficiency

Winter school 2025 “Challenges of treating rare neurological diseases”
12 Mar. 2025

Speaker: Thomas Opladen
University Children’s Hospital Heidelberg, Germany

Recording

Autonomic dysfunction in movement disorders

19 Nov. 2024

Speaker: Pietro Guaraldi
Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy

Recording

Neurogeriatric aspects and neurological aspects in palliative care of MSA, PSP and advanced PD

22 Oct. 2024

Speaker: Martin Klietz
Hannover Medical School, Germany

Recording

Genetic therapies and therapy developments for rare movement disorders

23 Jul. 2024

Speaker: Willeke van Roon-Mom
Leiden University medical center, Netherlands

Recording

Autoimmune parkinsonism

25 Jun. 2024

Speaker: Jeroen Kerstens
Antwerp University Hospital, Belgium

Recording

The spectrum of genetic synucleinopathies

12 Mar. 2024

Speaker: Leonidas Stefanis
University of Athens Medical School, Athens, Greece

Recording

Diagnostic workup and prognostic implication for sleep disorders in atypical parkinsonisms

14 Nov. 2023

Speaker: Giovanna Calandra Buonaura
University of Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy

Recording

Slides

Dissecting Fahr’s disease

13 Jun. 2023

Speaker: Amit Batla & Francesca Magrinelli
Institute of Neurology, University College London, UK

Recording

Slides

Introduction Radiotracer Imaging

Winter school 2023 “Neuroimaging”
25 Mar. 2023 | 3 – 4 pm CEST

Speaker: Jan Booij
Amsterdam University Medical Center, The Netherlands

Recording

Slides

Introduction in Structural Imaging

Winter school 2023 “Neuroimaging”
25 Mar. 2023 | 3 – 4 pm CEST

Speaker: Eva Bültmann
Medical University Hannover, Germany

Recording

Slides

Introduction to Functional MRI & Applications to Neurological Diseases

Winter school 2023 “Neuroimaging”
25 Mar. 2023 | 3 – 4 pm CEST

Speaker: Edoardo Gioele Spinelli
San Raffaele Scientific Institute, Milan, Italy

Recording

Slides

Imaging in Atypical Parkinsonian Syndroms

Winter school 2023 “Neuroimaging”
25 Mar. 2023 | 3 – 4 pm CEST

Speaker: Thilo van Eimeren & Stephane Lehericy
University Hospital Cologne, Germany & University Hospital Pitié Salpétrière, Paris, France

Recording

Slides

Update in synuclein PET tracer development

6 Dec. 2022

Speaker: Johannes Levin
Ludwig Maximilian University Hospital, Munich, Germany

Recording

Slides

Telerehabilitation in RND: an update

15 Nov. 2022

Speaker: Luigi Lavorgna
University Luigi Vanvitelli, Neaples, Italy

Recording

Slides

Clinical and genetic predictors of subthalamic nucleus deep brain stimulation in Parkinson’s disease

27 Sep. 2022

Speaker: Daniel Weiß
Hertie Institute for Clinical Brain Research, University of Tübingen, Germany

Recording

Young onset Parkinson’s disease – What is the difference?

5 Jul. 2022

Speaker: Bart Post
Radboud University Medical Centre, Nijmegen, Netherlands

Recording

Slides

Biofluid biomarkers in atypical parkinsonism

21 Jun. 2022

Speaker: Per Svenningsson
Karolinska University Hospital, Stockholm, Sweden

Recording

Basal ganglia diseases in childhood

12 Apr. 2022

Speaker: Belén Perez Dueñas
Vall d’Hebron University Hospital, Barcelona, Spain

Slides

New MDS criteria for clinical diagnosis of MSA

15 Feb. 2022

Speaker: Gregor Wenning & Iva Stankovic
Medical University Innsbruck, Austria; University of Belgrade, Serbia

Recording

The overlap between the spectrum of frontotemporal dementias and atypical Parkinsonism

8 Feb. 2022

Speaker: Vasilios Constantinides
National and Kapodistrian University of Athens, Greece.

Recording

Slides

Pure autonomic failure

18 Nov. 2021

Speaker: Alessandra Fanciulli
Medical University Innsbruck, Austria

Recording

Slides

Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting

19 Oct. 2021

Speaker: Annemieke Aartsma-Rus
Leiden University Medical Center, Netherlands

Recording

Slides

Functional gait disorders: a sign-based approach

12 Oct. 2021

Speaker: Jorik Nonnekes
Radboud University Medical Centre, Nijmegen, Netherlands

Recording

Slides

Genetic forms of parkinson

14 Sep. 2021

Speaker: Thomas Gasser
University Hospital Tübingen, Germany

Recording

Slides

Gene therapy in neuromuscular and mitochondrial disorders

11 May 2021

Speaker: Thomas Klopstock
Ludwig Maximilian University Hospital, Munich, Germany

Recording

Slides

Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers, Therapies

26 Jan. 2021

Speaker: Günter Höglinger
Hannover Medical School, Germany

Recording

Slides

Functional movement disorders: a diagnostic guide

1 Dec. 2020

Speaker: Christos Ganos
Charité, University Medicine Berlin, Germany

Recording

Slides

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Webinar Schedule

Latest News

  • Clinical Practice for Primary Progressive Aphasia (PPA) – Interview with Robert Rusina

    May 5, 2025
    It takes „about one year from the first symptoms to the first consultation of a physician, and another one year …read more »
  • Survey on Myoclonus Dystonia Syndrome

    April 10, 2025
    Myoclonus-dystonia syndrome (MDS) is a genetic movement disorder with childhood-onset, most frequently caused by SGCE defects. For this survey two …read more »
  • The Importance of Newborn Screening for Metachromatic Leukodystrophy (MLD)

    April 7, 2025
    MLD is a neurodegenerative disorder, that affects children at a very young age, leading to a premature death. In a …read more »

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ERN-RND

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European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/webinars/

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    Kidney transplants save lives — but the average wait is 6–8 years.
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    ERN-RND @ern-rnd.bsky.social 2 weeks

    💻 U#webinar#webinar on “Recent Advances in Clinical Trials in Multiple System Atrophy”
    📅 20th May, 3:00 CEST
    🗣️ David Bendetowicz, University Hospital Bordeaux, France
    Sign https://t1p.de/ri7k3de/ri7k3
    Joint with the European Reference Network for Rare Neuromuscular Diseases and
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    ERN-RND @ern-rnd.bsky.social 2 weeks

    💻 U#webinar#webinar on “Neurogeriatric Aspects in Rare Forms of Ataxia and HSP”
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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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