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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Disease Group: Dystonias, NBIA and Paroxysmal Disorders

Updates on the Management of Childhood-Onset Dystonia

8 Apr. 2025

Speaker: Darius Ebrahimi-Fakhari & Kathryn Yang
Movement Disorders Program, Department of Neurology, Boston Children’s Hospital, Harvard Medical School

Recording

Slides

Introduction – systematics of non-neurological aspects

Winter school 2025 “Challenges of treating rare neurological diseases”
14 Mar. 2025

Speaker: Michèl Willemsen
Radboudumc, Nijmegen, The Netherlands

Recording

Treatment of nano-rare neurological diseases

Winter school 2025 “Challenges of treating rare neurological diseases”
12 Mar. 2025

Speaker: Marlen Lauffer
Leiden University Medical Center​, The Netherlands

Recording

Treatment of Aromatic l-amino acid decarboxylase (AADC) deficiency

Winter school 2025 “Challenges of treating rare neurological diseases”
12 Mar. 2025

Speaker: Thomas Opladen
University Children’s Hospital Heidelberg, Germany

Recording

DBS in Dystonia – the network perspective

14 Nov. 2024

Speaker: Juho Joutsa Turku
University Hospital, Turku, Finland

Recording

Clinical neurophysiology in dystonia

24 Sep. 2024

Speaker: Anke Snijders
Radboud University Medical Center, Netherlands

Recording

Genetic therapies and therapy developments for rare movement disorders

23 Jul. 2024

Speaker: Willeke van Roon-Mom
Leiden University medical center, Netherlands

Recording

Dystonic Crisis and Reactions

Winter school 2024 “DBS in dystonia”
17-19 Apr. 2024

Speaker: Victoria Gonzalez
Clinic

Recording

Strategies of DBS Troubleshooting in Dystonia

Winter school 2024 “DBS in dystonia”
17-19 Apr. 2024

Speaker: Norbert Kovacs
Italy Azienda Ospedaliero-Universitaria Siena

Recording

MER and LFP Signals for Implantation and Programming in Dystonia Patients

Winter school 2024 “DBS in dystonia”
17-19 Apr. 2024

Speaker: Nicolo Pozzi
University of Würzburg, Germany

Recording

Neuroimaging for Implantation and Programming in Dystonia Patients

Winter school 2024 “DBS in dystonia”
17-19 Apr. 2024

Speaker: Martin Reich
Clinic

Recording

Botulinum Toxin – Opportunities and Limitation

Winter school 2024 “DBS in dystonia”
17-19 Apr. 2024

Speaker: Francesca Morgante
St George’s University Hospital London, UK

Recording

Drug Therapy and Neurorehabilitation – Opportunities and Limitations

Winter school 2024 “DBS in dystonia”
17-19 Apr. 2024

Speaker: Anna Castagna
Fondazione Don Carlo Gnocchi, Milan, Italy)

Recording

Combined and Complex Dystonias

Winter school 2024 “DBS in dystonia”
17-19 Apr. 2024

Speaker: Norbert Brueggemann
Clinic

Recording

Combined and Complex Dystonias

Winter school 2024 “DBS in dystonia”
17-19 Apr. 2024

Speaker: Norbert Brueggemann
University Hospital Schleswig-Holstein, Campus Lübeck, Germany

Recording

Slides

Clinical neurophysiology in dystonia

16 Jan. 2024

Speaker: Sylvia Bösch
Medical University Innsbruck, Austria

Recording

Slides

Introduction Radiotracer Imaging

Winter school 2023 “Neuroimaging”
25 Mar. 2023 | 3 – 4 pm CEST

Speaker: Jan Booij
Amsterdam University Medical Center, The Netherlands

Recording

Slides

Introduction in Structural Imaging

Winter school 2023 “Neuroimaging”
25 Mar. 2023 | 3 – 4 pm CEST

Speaker: Eva Bültmann
Medical University Hannover, Germany

Recording

Slides

Introduction to Functional MRI & Applications to Neurological Diseases

Winter school 2023 “Neuroimaging”
25 Mar. 2023 | 3 – 4 pm CEST

Speaker: Edoardo Gioele Spinelli
San Raffaele Scientific Institute, Milan, Italy

Recording

Slides

Towards precision medicine in NBIA

7 Mar. 2023

Speaker: Manju Kurian
UCL- GOS Institute of Child Health, London, UK

Recording

Slides

Telerehabilitation in RND: an update

15 Nov. 2022

Speaker: Luigi Lavorgna
University Luigi Vanvitelli, Neaples, Italy

Recording

Slides

DBS in Dystonia – Targets, programming and therapeutic challenges

18 Oct. 2022

Speaker: Philipp Capetian
University Hospital Würzburg, Germany

Slides

Basal ganglia diseases in childhood

12 Apr. 2022

Speaker: Belén Perez Dueñas
Vall d’Hebron University Hospital, Barcelona, Spain

Slides

Deep brain stimulation in children with acquired dystonia

7 Dec. 2021

Speaker: Anne Koy
University Hospital Cologne, Germany

Recording

Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting

19 Oct. 2021

Speaker: Annemieke Aartsma-Rus
Leiden University Medical Center, Netherlands

Recording

Slides

Functional gait disorders: a sign-based approach

12 Oct. 2021

Speaker: Jorik Nonnekes
Radboud University Medical Centre, Nijmegen, Netherlands

Recording

Slides

Treatable dystonia &dystonia in inborn errors of metabolism

28 Sep. 2021

Speaker: Tom J. de Koning
University Medical Centre Groningen, Netherlands

Recording

Slides

Gene therapy in neuromuscular and mitochondrial disorders

11 May 2021

Speaker: Thomas Klopstock
Ludwig Maximilian University Hospital, Munich, Germany

Recording

Slides

Myoclonus dystonia

9 Mar. 2021

Speaker: Belén Pérez Dueñas
Vall d’Hebron University Hospital, Barcelona, Spain

Recording

Slides

Genetic dystonia and treatment

2 Feb. 2021

Speaker: Sylvia Boesch
Medical University Innsbruck, Austria

Slides

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Webinar Schedule

Latest News

  • Clinical Practice for Primary Progressive Aphasia (PPA) – Interview with Robert Rusina

    May 5, 2025
    It takes „about one year from the first symptoms to the first consultation of a physician, and another one year …read more »
  • Survey on Myoclonus Dystonia Syndrome

    April 10, 2025
    Myoclonus-dystonia syndrome (MDS) is a genetic movement disorder with childhood-onset, most frequently caused by SGCE defects. For this survey two …read more »
  • The Importance of Newborn Screening for Metachromatic Leukodystrophy (MLD)

    April 7, 2025
    MLD is a neurodegenerative disorder, that affects children at a very young age, leading to a premature death. In a …read more »

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ERN-RND

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European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/webinars/

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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