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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Domain: Communicating and counselling patients

Social and Lifestyle Issues Related to FTD and PPA

Social and Lifestyle Issues Related to FTD and PPA

30 Sep. 2025 | 3 – 4 pm CEST
Zoom Registration

Speaker: Alexa Häger
University Hospital Aachen, Germany

Treatment of spasticity in children with rare neurological disorders – who, why, when and what?

Treatment of spasticity in children with rare neurological disorders – who, why, when and what?

Winter school 2025 “Challenges of treating rare neurological diseases”
13 Mar. 2025

Speaker: Annemieke Buizer
Amsterdam UMC, The Netherlands

Recording

Treatment of nano-rare neurological diseases

Treatment of nano-rare neurological diseases

Winter school 2025 “Challenges of treating rare neurological diseases”
12 Mar. 2025

Speaker: Marlen Lauffer
Leiden University Medical Center​, The Netherlands

Recording

Insights into growing up in families affected by Huntington’s disease

Insights into growing up in families affected by Huntington’s disease

28 Nov. 2023

Speaker: Siri Kjølaas
Oslo University Hospital, Centre for rare disorders, Oslo, Norway

Recording

Slides

X-Linked leukodystrophies – Update

X-Linked leukodystrophies – Update

7 Oct. 2021

Speaker: Caroline Sevin
Reference Center for Leukodystrophies, Hôpital de Bicêtre and ICM (institute of Brain and Spine), Paris, France

Recording

Slides

Webinar Schedule

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ERN-RND

@ern-rnd.bsky.social

164 Followers 90 Following 180 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

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    ERN-RND @ern-rnd.bsky.social 3 days

    Learn from Martin Reich in "Deep Brain Stimulation - Pitch and Live Case Discussion" at the Scientific Symposium "European Healthcare for RND Patients", Oct 28, 11:00 CET.

    Registration (free of charge): t1p.de/k7tec
    Program: t1p.de/u62ba
    Abstract: tinyurl.com/y7yx8e5v
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    ERN-RND @ern-rnd.bsky.social 4 days

    It's time for #RareNeurologicalDisease #news: this month with a video #interview on developing a guideline on NKX1-2-related disorders, 3 updated #PatientJourneys and a lot of surveys, workshops, congresses and symposia! Read our #newsletter here: www.ern-rnd.eu?mailpoet_rou...
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    ERN-RND @ern-rnd.bsky.social 4 days

    Curious about "Development and Implementation of ERN Care Pathways"? Join Birutė Tumienė at our Symposium "European Healthcare for RND Phttps://f.mtr.cool/gaopxhezhjRegistratihttps://f.mtr.cool/usfnrgxwhxhezhj
    Program: https://f.mtr.cool/usfnrgxwhx


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    ERN-RND @ern-rnd.bsky.social 4 days

    Don’t miss the "Krabbe Disease Expert Panel"- Pascal Martin shares expertise at the Scientific Symposium "European Healthcare for RND Patients", Oct 28, 9:20 CET.

    Registration (free of charge): https://f.mtr.cool/icvnhnnvbw
    Prohttps://f.mtr.cool/icvnhnnvbwpeugjx
     
    https://f.mtr.cool/cepqpeugjxhtag/KrabbeDisease">#KrabbeDisease
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    ERN-RND @ern-rnd.bsky.social 5 days

    Don't miss our Symposium on "European Healthcare for RND Patients" - with insights from the #ERNs ERN-RND, Epicare & ERNICA as well as from #ERNs, #ERNs on October 28, starting at 8:20 CET.

    Registration: tinyurl.com/p8wrbucf

    Agenda: tinyurl.com/49yhy4rx
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    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 1 week

    Still time to register for the next FREE EPNS webinar!
    Wed 8 Oct 2025 | 17:00 CET
    Topic: Neurological complications of paediatric cancer & treatment
    Live on Zoom | Open to all!
    Register free: us02web.zoom.us/webinar/regi...
    #EPNS #PaediatricNeurology
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    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    Join the next EPNS Journal Club

    Wed 22 Oct 2025 at 17:00 CET

    Differential diagnosis and comparison of diagnostic algorithms in children and adolescents with autoimmune encephalitis in Spain

    Free & open to all
    Register us02web.zoom.us/webinar/regi...
    Article: pubmed.ncbi.nlm.nih.gov/39706634/

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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