Webinars

ERN-RND webinars in collaboration with ERN EURO-NMD and EAN

ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.

Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

Recorded webinars:  The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.

Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

Next webinar organised by ERN-RND will be on:

21 June 2022 – Biofluid biomarkers in atypical parkinsonism

2022

For your convenience you can import this ics file containing all ERN-RND webinar dates scheduled until 22.12.2022 in your calendar. Registration for individual webinars is still necessary!
Note that the webinar on 24.06. takes place at a different time.

Date Topic Speaker Institution ERN Focus
21 June 2022, 3-4 pm CEST Biofluid biomarkers in atypical parkinsonism Per Svenningsson Karolinska Institute, Stockholm, Sweden. ERN-RND
24 June 2022, 10-11 am CEST Caring HD: the experience of the French National Reference Centre Anne-Catherine Bachoud-Lévi & Katia Youssov University Hospital Henri-Mondor, Paris, France. ERN-RND
28 June 2022, 3-4 pm CEST Magnetic resonance imaging in the diagnostic assessment of cerebellar ataxias Jennifer Faber German Center for Neurodegenerative Disorders, Bonn, Germany. ERN-RND
5 July 2022, 3-4 pm CEST Young onset Parkinson’s disease, what is the difference? Bart Post Radboud University Medical Center, Nijmegen, the Netherlands ERN-RND
12 July 2022, 3-4 pm CEST Importance of autopsies in leukodystrophies Marianna Bugiani Amsterdam University Medical Center, the Netherlands ERN-RND
13 September 2022, 3-4 pm CEST Vanishing white matter Marjo van der Knaap Amsterdam University Medical Center, the Netherlands ERN-RND
27 September 2022, 3-4 pm CEST Clinical and genetic predictors of subthalamic nucleus deep brain stimulation in Parkinson's disease Daniel Weiß University of Tübingen, Germany ERN-RND
4. October 2022, 3-4 pm CEST CACNA1A-related disorders: clinical presentation and therapeutic options​ Elisabetta Indelicatto Medical University Innsbruck, Austria ERN-RND
11. October 2022, 3-4 pm CEST Krabbe disease – natural history and treatment option​ Samuel Gröschel and Ingeborg Krägeloh-Mann University Hospital Tübingen, Germany ERN-RND
18.October 2022, 3-4 pm CEST DBS in Dystonia – Targets, programming and therapeutic challenges Philipp Capetian University Hospital Würzburg, Germany ERN-RND
25.October 2022, 3-4 pm CEST VPS13A and XK bulk lipid transfer diseases (formerly the now obsolete Levine-Critchley syndrome) Adrian Danek University Hospital Munich, Germany ERN-RND
08. November 2022, 3-4 pm CET When is it appropriate to suspect a metabolic disorder in a child with chorea? Juan Dario Ortigoza-Escobar Sant Joan de Déu, Barcelona, Spain ERN-RND
15. November 2022, 3-4 pm CET Telerehabilitation in RND: an update Luigi Lavorgna Neaples, Italy. ERN-RND
22. November 2022, 3-4 pm CET Use of Biomarkers to monitor the presymptomatic phase of Genetic FTD: research advances for clinical trial readiness Dario Saracino and Harro Seelaar Brain and Spine Institute, Paris, France; Erasmus MC- Rotterdam, the Netherlands ERN-RND
29. November 2022, 3-4 pm CET DBS in acquired dystonia Anne Koy University Hospital Cologne, Germany ERN-RND

Webinars from partner professional organisations

Webinars from other organisations

Ataxia Global Initiative

SJD Formación de Déu

All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.

Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.