ERN-RND webinars in collaboration with ERN EURO-NMD and EAN
ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.
Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.
Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
Recorded webinars: The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.
Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.
Next webinar organised by ERN-RND will be on:
07. March 2023: ‘Towards precision medicine in NBIA’ by Manju Kurian, GOS Institute of Child Health, University College London, UK. SIGN UP here
7. March 2023, 3 - 4 pm CETTowards precision medicine in NBIAManju KurianGOS Institute of Child Health, University College London, UK ERN-RND
|Date||Topic||Speaker||Institution||ERN||Focus||7. March 2023, 3 - 4 pm CET||Towards precision medicine in NBIA||Manju KurianGOS||Institute of Child Health, University College London, UK||ERN-RND|
|9. March 2023, 4 -5 pm CET||Muscle hyperexcitability and cramps||Federica Montagnese||Friedrich Baur Institute, Ludwig Maximilians University, Munich, Germany||EURO-NMD|
|14. March 2023, 3 -4 pm CET||FTD- in whom, when and how genetic testing should be applied||Laura Donker Kaat||Erasmus Medical Center Rotterdam, Netherlands||ERN-RND|
|6. April 2023, 4 -5 pm CET||Inflammatory Myopathies||Werner Stenzel||Charité – Universitätsmedizin Berlin, Germany||EURO-NMD|
|27. April 2023, 4 -5 pm CET||Fatigue in Neuromuscular Disorders||Nicole B.M. Voet||Radboud University Medical Center, the Netherlands||EURO-NMD|
|4. Mai 2023, 4 -5 pm CET||Floppy child||Ulrike Schara-Schmidt||University Clinics Essen, Essen, Germany||EURO-NMD|
|9. Mai 2023, 3 - 4 pm CET||Non-pharmacological approaches to treatment in svPPA||Ana Sofia Costa||RWTH-University Hospital Aachen, Germany||ERN-RND|
|23. Mai 2023, 3 - 4 pm CET||Frontotemporal dementia vs. primary psychiatric disorders||Tim van Langenhove||University Hospital Ghent, Belgium||ERN-RND|
|20. June 2023, 3 - 4 pm CET||Haematopoietic Stem Cell Transplantion in Leukodystrophies||Jörn-Sven Kühl||University Hospital Leipzig, Germany||ERN-RND|
|27. June 2023, 3 - 4 pm CET||Huntington disease: new insights into molecular pathogenesis and therapeutic opportunities||Sarah Tabrizi||UCL Queen Square Institute of Neurology, London, UK||ERN-RND|
|6. July 2023, 4 -5 pm CET||Cardiac Involvement in Neuromuscular Diseases||Karim Wahbi||APHP Hospital Cochin, Paris, France||EURO-NMD|
|12. September 2023, 3 - 4 pm CET||Friedreich Ataxia||Kathrin Reetz||RWTH-University Hospital Aachen, Germany||ERN-RND|
|26. September 2023, 3 - 4 pm CET||Neuropsychological assessment in primary progressive aphasia – recommendations and pitfalls in clinical practice||Lize Jiskoot||Erasmus Medical Center Rotterdam, Netherlands||ERN-RND|
|10. October 2023, 3 - 4 pm CET||Advanced therapies and clinical trials in Leukodystrophies||Caroline Sevin & Nicole Wolf||Reference Centre for Leukodystrophies, University Hospital Bicetre, Paris, France & Amsterdam Leukodystrophy Center, VUMC- Amsterdam University Medical Centers, Netherlands||ERN-RND|
|24. October 2023, 3 - 4 pm CET||Newborn screening in leukodystrophies||Lucia Laugwitz||University Hospital Tübingen, Germany||ERN-RND|
|9. November 2023, 4 -5 pm CET||Pathology of Peripheral Nerves||Joachim Weis||University Hospital RWTH Aachen, Germany||EURO-NMD|
Webinars from partner professional organisations
All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.
Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.