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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
    • Objectives of ERN-RND
    • Diseases Groups Covered
    • ERN-RND coordinators
    • ERN-RND coordination office
    • ERN-RND board
    • Patient advocates
    • Work Packages
    • Monitoring
    • Publications Acknowledging ERN-RND
  • Expert Centres
    • … for rare neurological diseases
    • Full members and affiliated partners
    • How to contact expert centres
    • Supporting partners
    • Videos from our members
  • Online case discussion with CPMS
    • What is the CPMS
    • Who can use it
    • How to use it
    • MLD Treatment eligibility panel
    • CPMS Helpdesk
    • Videos
    • Downloads
    • Websites
  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
    • ERN-RND Patient Journeys
  • Education & Training
    • Webinars
    • Past webinars
    • Short Exchange Programme
    • EJP RD funded training – Research on RD
    • Winter School
  • Registry
    • ERN-RND registry objectives
    • Disease Groups covered
    • Pilot Phase
    • Registry Manual
    • Contact
  • Collab­ora­tions
    • EJP RD
      • EJP RD in a nutshell
      • What is EJP RD?
      • EJP RD mission & goals
      • EJP RD & ERNs
    • Solve-RD
      • What is Solve-RD?
      • Main Objectives
      • Implementation Steps
      • Analysis
    • Value of Treatment (VoT)
      • VoT project coordinator
      • Objectives of the VoT project
      • ERN-RND in VoT2
      • Academic partners in VoT2
      • Further reading
  • News & Events
    • News
    • Events
    • Newsletters
    • Meet the members
  • Contact us
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ERN-RND expert centres in Prague

Motol University Hospital, Center for hereditary ataxias, Prague, Czech Republic (adults)

Motol University Hospital, Centre of Hereditary Ataxias, Prague, Czech Republic (paediatrics)

Charles University Thomayer University Hospital, Prague, Czech Republic

Webinar Schedule

Latest News

  • TIME TO ACT – IMPROVING RARE DISEASE DIAGNOSIS AND SOLVING THE UNSOLVED RARE DISEASE THROUGH COLLABORATION IN EUROPE

    May 11, 2023
    The Solve-RD consortium and associated European Solve-RD network, including among others six European Reference Networks, EURORDIS, Orphanet and leading European …read more »

  • 35th Annual Meeting EACD

    May 10, 2023
    The 35th Annual Meeting EACD “to be held between 24 – 27 May 2023 in Ljubljana, Slovenia, hosted by University …read more »

  • 12th EURORDIS Black Pearl Awards Ceremony: recording online

    March 6, 2023
    After 2 years online, it has been an absolute pleasure to gather together again to celebrate our amazing awardees with over …read more »

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ERN-RND European Reference Network for Rare Neurological Diseases

Latest Events

  • Samuel Belzberg 6th International Dystonia Symposium

    June 3, 2023
    1-3 June 2023, Dublin Hear from expert faculty as they discuss and debate cutting edge dystonia research. With over sixty …read more »

  • 2023 Euromit

    June 15, 2023
    11-15 June 2023, Bologna In the tradition of this meeting, the intent is to encourage the participation of diverse professional …read more »

  • GNAO1 European Conference 2023

    June 17, 2023
    The third edition of the GNAO1 European Conference, 16-17 June, Rome, Italy Two days entirely dedicated to the ultra-rare disease …read more »

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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