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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
    • Objectives of ERN-RND
    • Diseases Groups Covered
    • ERN-RND coordinators
    • ERN-RND coordination office
    • ERN-RND board
    • Patient advocates
    • Work Packages
    • Monitoring
    • Publications Acknowledging ERN-RND
  • Expert Centres
    • … for rare neurological diseases
    • Full members and affiliated partners
    • How to contact expert centres
    • Supporting partners
    • Videos from our members
  • Online case discussion with CPMS
    • What is the CPMS
    • Who can use it
    • How to use it
    • Special case for CPMS
    • CPMS Helpdesk
    • Videos
  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
  • Education & Training
    • Webinars
    • Past webinars
    • Short Exchange Programme
    • EJP RD funded training – Research on RD
    • Winter School
  • Registry
    • ERN-RND registry objectives
    • Disease Groups covered
    • Pilot Phase
    • Registry Manual
    • Contact
  • Collab­ora­tions
    • EJP RD
      • What is EJP RD?
      • EJP RD mission & goals
      • EJP RD & ERNs
      • EJP RD in a nutshell
    • Solve-RD
      • What is Solve-RD?
      • Main Objectives
      • Implementation Steps
      • Analysis
    • Value of Treatment (VoT)
      • VoT project coordinator
      • Objectives of the VoT project
      • ERN-RND in VoT2
      • Academic partners in VoT2
      • Further reading
  • News & Events
    • News
    • Events
    • Newsletters
    • Meet the members
  • Contact us
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ERN-RND expert centres in Prague

Motol University Hospital, Center for hereditary ataxias, Prague, Czech Republic (adults)

Motol University Hospital, Centre of Hereditary Ataxias, Prague, Czech Republic (paediatrics)

Charles University Thomayer University Hospital, Prague, Czech Republic

Webinar Schedule

Latest News

  • Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy”

    March 1, 2022
    read more »

  • Publication from the European Metachromatic Leukodystrophy initiative (MLDi)

    February 16, 2022
    read more »

  • Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion”

    February 9, 2022
    read more »

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ERN-RND European Reference Network for Rare Neurological Diseases

Latest Events

  • 18 – 21 May| 34th European Academy Of Childhood Disability (EACD) Annual Meeting

    May 22, 2022
    read more »

  • 21 – 26 May 2022 | 15th World Congress of Neuromodulation (INS 2022)

    May 26, 2022
    read more »

  • 25 – 28 June 2022 | 8th Congress of the European Academy of Neurology – Europe 2022

    June 29, 2022
    read more »

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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