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Interview: “de neuroloog” with Holm Graessner about the neurological ERNs
What do centres of expertise gain from participating in an ERN?Graessner: An immediate advantage is when doctors at such a… Continue reading
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MEP Meeting on Brain Health and Neurological Conditions
“Does current policy meet the needs of the rare neurology community” and “The impact of rare neurological conditions, through the… Continue reading
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Solve-RD: Interview with coordinator Holm Graessner
Within the Solve-RD project, over 300 experts from different European countries and Canada re-analysed genome data from undiagnosed 6447 patients.… Continue reading
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Holm Graessner becomes Lancet Commissioner
Our coordinator Holm Graessner is now commissioner for the freshly launched Rare Diseases International Lancet Commission on Rare Diseases (RDI-LCRD)!… Continue reading
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Meeting with MEPs for Rare Disease Day
Rare Disease Day is coming up! Join us for shaping the future on policy for Rare Neurological Diseases on February… Continue reading
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ERN-RND now on BlueSky!
You can now find us on BlueSky: @ern-rnd.bsky.social Did you know that BlueSky was conceptualized in 2019 by former Twitter CEO… Continue reading
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NGS: European Quality Assessment for ERN-RND centers
Why is a quality assessment on European level important for next generation seuencing (NGS)? What needs to be improved and… Continue reading
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6th ERN-RND Winter School
The European Pediatric Neurology Society (EPNS) and the European Reference Network for Rare Neurological Diseases (ERN-RND) are organizing a Winter… Continue reading
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New Study on MLD
The combination of newborn screening, care pathway and respective therapies led to a major breakthrough for rare diseases in this… Continue reading
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ERN-RND | European Reference Network on Rare Neurological Diseases
for rare or low prevalence complex diseases