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NGS: European Quality Assessment for ERN-RND centers
Why is a quality assessment on European level important for next generation seuencing (NGS)? What needs to be improved and… Continue reading
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6th ERN-RND Winter School
The European Pediatric Neurology Society (EPNS) and the European Reference Network for Rare Neurological Diseases (ERN-RND) are organizing a Winter… Continue reading
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New Study on MLD
The combination of newborn screening, care pathway and respective therapies led to a major breakthrough for rare diseases in this… Continue reading
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Our Patient Journeys at EURORDIS Podcast “ERNs on Air”
Patient Journeys are practical quick overviews that guide you through the stages of a rare neurological disease. But do you… Continue reading
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Agenda for Annual Meeting 2024
It is still possible to register to our ERN-RND annual meeting Care-RND24! Continue reading
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100th ERN-RND Webinar!
We are happy to announce that our 100th webinar on rare neurological diseases will be held tomorrow at 15 CEST… Continue reading
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EAN 2024: Come and visit us!
We are looking forward to meeting you at this year’s EAN Congress: come and visit us at our booth N27… Continue reading
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Recordings of ERN-RND Spring School 2024 online
If you missed a session of our Spring School “DBS in Dystonia” you can now watch it online. The following… Continue reading
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ERN-RND | European Reference Network on Rare Neurological Diseases
for rare or low prevalence complex diseases
