Events – ERN-RND | European Reference Network on Rare Neurological Diseases

22 October 2020 | EURO-NMD webinar “personalized care for patients with ALS: ALS Home monitoring & coaching”

Continue reading “22 October 2020 | EURO-NMD webinar “personalized care for patients with ALS: ALS Home monitoring & coaching””

13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea”

Continue reading “13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea””

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

Continue reading “6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies””

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

Continue reading “29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?””

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

Continue reading “17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm””

15 September 2020 | “A challenge in neurogenetics: Huntington disease in kids”

Continue reading “15 September 2020 | “A challenge in neurogenetics: Huntington disease in kids””

8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia”

Continue reading “8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia””

11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience

Continue reading “11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience”

14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes”

Continue reading “14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes””

9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia”

Continue reading “9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia””

30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia”

Continue reading “30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia””

18 June 2020 | ERN-RND webinar “Goal setting and outcome measures of interventions in pediatric rehabilitation”

Continue reading “18 June 2020 | ERN-RND webinar “Goal setting and outcome measures of interventions in pediatric rehabilitation””

15-16-17 June 2020 | ERN-RND (virtual) Annual Meeting

Continue reading “15-16-17 June 2020 | ERN-RND (virtual) Annual Meeting”

9 June 2020 | Webinar “The impact of COVID 19 for people living with a Rare Disease” by EC & EURORDIS

Continue reading “9 June 2020 | Webinar “The impact of COVID 19 for people living with a Rare Disease” by EC & EURORDIS”

6-9 June 2020 | ESHG 2020.2 – Live in your living room

Continue reading “6-9 June 2020 | ESHG 2020.2 – Live in your living room”

23-26 May 2020 | 6th (Virtual) Congress of the European Academy of Neurology

Continue reading “23-26 May 2020 | 6th (Virtual) Congress of the European Academy of Neurology”

26 May 2020 | ERN-RND webinar “Primary progressive aphasia subtyping in clinical practice”

Continue reading “26 May 2020 | ERN-RND webinar “Primary progressive aphasia subtyping in clinical practice””

14-15 May 2020 | 10th European Conference on Rare Diseases & Orphan Products (ECRD2020)

Continue reading “14-15 May 2020 | 10th European Conference on Rare Diseases & Orphan Products (ECRD2020)”

12 May 2020 | ERN-RND webinar “paroxysmal dyskinesias: update on clinical and genetic aspects”

Continue reading “12 May 2020 | ERN-RND webinar “paroxysmal dyskinesias: update on clinical and genetic aspects””

29 April | Share4Rare webinar: “State of the Art of Rare Disease Activities in Europe”

Continue reading “29 April | Share4Rare webinar: “State of the Art of Rare Disease Activities in Europe””

27-29 April 2020 | ‘Training on strategies to foster solutions of undiagnosed rare disease cases’

Continue reading “27-29 April 2020 | ‘Training on strategies to foster solutions of undiagnosed rare disease cases’”

23 April 2020 | EURO-NMD webinar “exercise & NMD”

Continue reading “23 April 2020 | EURO-NMD webinar “exercise & NMD””

21 April 2020 | ERN-RND webinar “hypomyelination”

Continue reading “21 April 2020 | ERN-RND webinar “hypomyelination””

14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism”

Continue reading “14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism””

6-7 April 2020 | SCA Global Conference CANCELLED

Continue reading “6-7 April 2020 | SCA Global Conference CANCELLED”

6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination”

Continue reading “6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination””

28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED

Continue reading “28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED”

25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes

Continue reading “25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes”

Category: Events

1-5 June 2021 | 14th European Paediatric Neurology Society Congress

19 November 2020 | EURO-NMD webinar “congenital Myasthenia Syndrome – an update”

22 October 2020 | EURO-NMD webinar “personalized care for patients with ALS: ALS Home monitoring & coaching”

13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea”

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

15 September 2020 | “A challenge in neurogenetics: Huntington disease in kids”

8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia”

11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience

14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes”

9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia”

30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia”

18 June 2020 | ERN-RND webinar “Goal setting and outcome measures of interventions in pediatric rehabilitation”

15-16-17 June 2020 | ERN-RND (virtual) Annual Meeting

9 June 2020 | Webinar “The impact of COVID 19 for people living with a Rare Disease” by EC & EURORDIS

6-9 June 2020 | ESHG 2020.2 – Live in your living room

23-26 May 2020 | 6th (Virtual) Congress of the European Academy of Neurology

26 May 2020 | ERN-RND webinar “Primary progressive aphasia subtyping in clinical practice”

14-15 May 2020 | 10th European Conference on Rare Diseases & Orphan Products (ECRD2020)

12 May 2020 | ERN-RND webinar “paroxysmal dyskinesias: update on clinical and genetic aspects”

29 April | Share4Rare webinar: “State of the Art of Rare Disease Activities in Europe”

27-29 April 2020 | ‘Training on strategies to foster solutions of undiagnosed rare disease cases’

23 April 2020 | EURO-NMD webinar “exercise & NMD”

21 April 2020 | ERN-RND webinar “hypomyelination”

14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism”

6-7 April 2020 | SCA Global Conference CANCELLED

6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination”

28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED

25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes