ERN-RND provides educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN).
The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks. The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.
The webinars are for clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.
|28 January 2020
|Introduction to Leukodystrophies (with paediatric focus)||Nicole Wolf||Amsterdam University Medical Center, Netherlands||ERN-RND|
|4 February 2020
|Clinical evaluation of Dystonia||Kailash Bhatia||UCL Queen Square Institute of Neurology, London, UK||ERN-RND|
|18 February 2020
|Mitochondrial disorder with chorea||Martin Paucar||Karolinska Institute, Stockholm, Sweden||ERN-RND|
|20 February 2020||Mitochondrial donation||Robert McFarland||Welcome Center Mitochondrial Research, Newcastle University, UK||EURO-NMD|
|3 March 2020
|Ultrasound diagnostics for cervical Dystonia||Tobias Baümer||University of Lübeck, Institute of Neurogenetics, Germany||ERN-RND|
|14 April 2020
|Recognizing atypical parkinsonism||Wassilios Meissner||University Hospital Bordeaux, Institute of Neurodegenerative Disorders||ERN-RND|
|23 April 2020||Exercise & NMD||Nicole Voet||Klimmendaal – polikliniek, Netherlands||EURO-NMD|
|17 September 2020||The basics of genetic approaches for NMDs - using DMD as a paradigm||Annemieke Aartsma-Rus||Leiden University Medical Center, Netherlands||EURO-NMD|
|22 October 2020||Personalized care for patients with ALS: ALS Home monitoring & coaching||Anita Beelen||University Medical Center Utrecht, Netherlands||EURO-NMD|
|19 November 2020||Congenital Myasthenia Syndrome - an update||Sithara Ramdas||Oxford University Hospitals NHS Foundation Trust John Radcliffe Hospital||EURO-NMD|