Webinars

ERN-RND provides educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN).

The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks. The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

The webinars are for clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

NEXT WEBINAR organised by the European Huntington Association and ERN-RND will be on 6 April 2020, 4-5:30pm CET:

"Huntington's disease and the COVID-19 pandemic - a difficult combination"

Date Topic Speaker Institution ERN
14 April 2020
15-16h CET
Recognizing atypical parkinsonism Wassilios Meissner University Hospital Bordeaux, Institute of Neurodegenerative Disorders ERN-RND
21 April 2020 15-16h CET Hypomyelination (paediatric focus) Nicole Wolf Amsterdam University Medical Center, the Netherlands ERN-RND
23 April 2020 Exercise & NMD Nicole Voet Klimmendaal – polikliniek, Netherlands EURO-NMD
12 May 15-16h CET Paroxysmal dyskinesias: update on clinical and genetic aspects (paediatric focus) Giovanna Zorzi Foundation I.R.C.C.S - Institute of Neurology Carlo Besta , Milan, Italy ERN-RND
17 September 2020 The basics of genetic approaches for NMDs - using DMD as a paradigm Annemieke Aartsma-Rus Leiden University Medical Center, Netherlands EURO-NMD
13 October 2020 Diagnostic algorithm for childhood onset chorea Juan Dario Ortigoza-Escobar Sant Joan de Déu Hospital, Barcelona, Spain ERN-RND
22 October 2020 Personalized care for patients with ALS: ALS Home monitoring & coaching Anita Beelen University Medical Center Utrecht, Netherlands EURO-NMD
19 November 2020 Congenital Myasthenia Syndrome - an update Sithara Ramdas Oxford University Hospitals NHS Foundation Trust John Radcliffe Hospital EURO-NMD