Webinars

ERN-RND provides educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN).

The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks. The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

The webinars are for clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

Next webinar organised by ERN EURO-NMD will be on:

"Myasthenia Gravis"

 
Date Topic Speaker Institution ERN Focus
10 December Myasthenia Gravis Isabel Leite University of Oxford, UK EURO-NMD
26 January 2021, 3-4pm CET Manage Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies Günter Höglinger Medical University Hannover, Germany ERN-RND
2 February 2021, 3-4pm CET Genetic dystonia and treatment Sylvia Boesch Medical University of Innsbruck, Austria ERN-RND
9 February 2021 Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world Amy R. Viehoever Washington University, Saint Louis, USA ERN-RND
1 March 2021 Introduction to rare neurological diseases, Rare Disease Day Marina AJ de Koning-Tijssen University Medical Centre Groningen (UMCG), the Netherlands ERN-RND
13 April 2021, 3-4pm CET MR Biomarkers in Spinocerebellar Ataxias Gülin Öz University of Minnesota, Minneapolis, USA ERN-RND
20 April 2021, 3-4pm CET Approach to the patient with non-HD chorea Ruth Walker Mount Sinai School of Medicine, NY, USA ERN-RND
23 March 2021, 3-4pm CET Frontotemporal dementia (TBD) Harro Seelaar Erasmus Medical Center Rotterdam, the Netherlands ERN-RND
4 May 2021, 3-4pm CET Better Conversations -Communication Partner Training for language led dementias Anna Volkmer University College London, UK ERN-RND
18 May 2021, 3-4pm CET Benign hereditary choreas Kathryn Peall Cardiff University, UK ERN-RND
15 June 2021, 3-4pm CET Update Metachromatic Leukodystrophy Samuel Gröschel & Ingeborg Krägeloh-Mann University Hospital Tübingen, Germany ERN-RND
6 July 2021, 3-4pm CET Speech as a biomarker in ataxia: What can it tell us and how should we use it? Adam Vogel University of Melbourne, Australia ERN-RND
9 November 2021, 3-4pm CET Clinical Outcome Assessments in Ataxias Thomas Klockgether University Hospital Bonn, Germany ERN-RND