ERN-RND webinars in collaboration with ERN EURO-NMD and EAN
ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.
Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.
Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
Recorded webinars: The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.
Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.
|9 March 2021, 3-4pm CET||Myoclonus dystonia||Belén Pérez Dueñas (Chair Marina de Koning-Tijssen)||Vall d'Hebron University Hospital, Barcelona, Spain (Chair from University Medical Centre Groningen, the Netherlands)||ERN-RND|
|11 March 2021, 4-5pm CET||Telemedicine in NMD: state of the art||Sabrina Sacconi, Gabriele Siciliano||ERN EURO-NMD|
|23 March 2021, 3-4pm CET||Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity||Harro Seelaar||Erasmus Medical Center Rotterdam, the Netherlands||ERN-RND|
|25 March 2021, 4-5pm CET||Modeling Disease Progression in GNE Myopathy||Melanie Quintana||ERN EURO-NMD|
|13 April 2021, 3-4pm CET||MR Biomarkers in Spinocerebellar Ataxias||Gülin Öz||University of Minnesota, Minneapolis, USA||ERN-RND|
|20 April 2021, 3-4pm CET||Approach to the patient with non-HD chorea||Ruth Walker||Mount Sinai School of Medicine, NY, USA||ERN-RND|
|22 April 2021, 4-5pm CET||Atypical MND presentations||Wladimir Bocca VR Pinto||Dept of Neuromuscular Diseases, Federal University of São Paulo (UNIFESP), Brazil||ERN EURO-NMD|
|4 May 2021, 3-4pm CET||Better Conversations -Communication Partner Training for language led dementias||Anna Volkmer||University College London, UK||ERN-RND|
|11 May 2021, 3-4pm CET||Gene therapy in neuromuscular and mitochondrial disorders||Thomas Klopstock||Ludwig Maximilans University, Munich, Germany||ERN-RND|
|18 May 2021, 3-4pm CET||Benign hereditary choreas||Kathryn Peall||Cardiff University, UK||ERN-RND|
|20 May 2021, 4-5pm CET||Muscle and Ageing||Gillian Buttler-Brown||ERN EURO-NMD|
|27 May 2021, 4-5pm CET||What’s new in the FSHD field?||Sabrina Sacconi & Teresinha Evangelista||ERN EURO-NMD|
|8 June 2021, 3-4pm CET||MRI pattern recognition in leukodystrophie||Nicole Wolf||Emma Children’s Hospital, Amsterdam University Medical Centre, the Netherlands||ERN-RND|
|15 June 2021, 3-4pm CET||Update Metachromatic Leukodystrophy||Samuel Gröschel & Ingeborg Krägeloh-Mann||University Hospital Tübingen, Germany||ERN-RND|
|24 June 2021, 4-5pm CET||New LGMD classification||Volker Straub||ERN EURO-NMD|
|6 July 2021, 3-4pm CET||Speech as a biomarker in ataxia: What can it tell us and how should we use it?||Adam Vogel||University of Melbourne, Australia||ERN-RND|
|14 September 2021, 3-4pm CET||Genetic forms of Parkinson's disease||Thomas Gasser||University Tübingen, Germany||ERN-RND|
|28 September 2021, 3-4pm CET||Treatable dystonias & dystonia in inborn errors of metabolism||Tom J. de Koning||University Medical Center Groningen, the Netherlands||ERN-RND|
|5 October 2021, 3-4pm CET||Adult leukodystrophies - early symptoms of late onset leukodystrophies||Fanny Mochel||University Pierre and Marie Curie (UPMC), France||ERN-RND|
|7 October 2021, 3-4pm CET||X-linked adrenoleukodystrophies – Update (paediatric focus)||Caroline Sevin||Reference Center for Leukodystrophies, Hospital Bicêtre and Institute for Brain and Spine, Paris, France||ERN-RND|
|12 October 2021, 3-4pm CET||Functional gait disorders: a sign-based approach||Jorik Nonnekes||Radboud University Medical Centre (Radboudumc), Nijmegen, the Netherlands||ERN-RND|
|19 October 2021, 3-4pm CET||Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting||Annemieke Aartsma-Rus||Leiden University Medical Center, the Netherlands||ERN-RND|
|26 October 2021, 3-4pm CET||Pelizaeus-Merzbacher disease and related disorders||Nicole Wolf||Emma Children’s Hospital, Amsterdam University Medical Centre, the Netherlands||ERN-RND|
|9 November 2021, 3-4pm CET||Clinical Outcome Assessments in Ataxias||Thomas Klockgether||University Hospital Bonn, Germany||ERN-RND|
|18 November 2021, 3-4pm CET||Pure autonomic failure: really that pure?||Alessandra Fanciulli||Innsbruck Medical University, Austria||ERN-RND|
|18 November 2021, 4-5pm CET||Muscle and Statins||Kristl Claeys||Leuven, Belgium||ERN EURO-NMD|
Webinars from partner professional organisations
Webinars from ERN-RND member patient organisations
Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.