ERN-RND provides educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN).
The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks. The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.
The webinars are for clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.
NEXT WEBINAR organised by the European Huntington Association and ERN-RND will be on 6 April 2020, 4-5:30pm CET:
|14 April 2020
|Recognizing atypical parkinsonism||Wassilios Meissner||University Hospital Bordeaux, Institute of Neurodegenerative Disorders||ERN-RND|
|21 April 2020 15-16h CET||Hypomyelination (paediatric focus)||Nicole Wolf||Amsterdam University Medical Center, the Netherlands||ERN-RND|
|23 April 2020||Exercise & NMD||Nicole Voet||Klimmendaal – polikliniek, Netherlands||EURO-NMD|
|12 May 15-16h CET||Paroxysmal dyskinesias: update on clinical and genetic aspects (paediatric focus)||Giovanna Zorzi||Foundation I.R.C.C.S - Institute of Neurology Carlo Besta , Milan, Italy||ERN-RND|
|17 September 2020||The basics of genetic approaches for NMDs - using DMD as a paradigm||Annemieke Aartsma-Rus||Leiden University Medical Center, Netherlands||EURO-NMD|
|13 October 2020||Diagnostic algorithm for childhood onset chorea||Juan Dario Ortigoza-Escobar||Sant Joan de Déu Hospital, Barcelona, Spain||ERN-RND|
|22 October 2020||Personalized care for patients with ALS: ALS Home monitoring & coaching||Anita Beelen||University Medical Center Utrecht, Netherlands||EURO-NMD|
|19 November 2020||Congenital Myasthenia Syndrome - an update||Sithara Ramdas||Oxford University Hospitals NHS Foundation Trust John Radcliffe Hospital||EURO-NMD|