Webinars

ERN-RND provides educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN).

The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks. The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

The webinars are for clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

Date Topic Speaker Institution ERN Focus
26 January 2021, 3-4pm CET Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies Günter Höglinger Medical University Hannover, Germany ERN-RND
2 February 2021, 3-4pm CET Genetic dystonia and treatment Sylvia Boesch Medical University of Innsbruck, Austria ERN-RND
9 February 2021 Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world Amy R. Viehoever Washington University, Saint Louis, USA ERN-RND
23 February 2021 Improving care for rare disease patients in Europe - Rare Disease Day 2021 Holm Graessner
Donna Walsh
Sophie Bernichtein
Tobias Mentzel
Maria Judit Molnar
ERN-RND
EFNA
BRAIN-TEAM
ELA Germany
Semmelweis University
ERN-RND
9 March 2021, 3-4pm CET Myoclonus dystonia Belén Pérez Dueñas (Chair Marina de Koning-Tijssen) Vall d'Hebron University Hospital, Barcelona, Spain (Chair from University Medical Centre Groningen, the Netherlands) ERN-RND
23 March 2021, 3-4pm CET Frontotemporal dementia (TBD) Harro Seelaar Erasmus Medical Center Rotterdam, the Netherlands ERN-RND
13 April 2021, 3-4pm CET MR Biomarkers in Spinocerebellar Ataxias Gülin Öz University of Minnesota, Minneapolis, USA ERN-RND
20 April 2021, 3-4pm CET Approach to the patient with non-HD chorea Ruth Walker Mount Sinai School of Medicine, NY, USA ERN-RND
4 May 2021, 3-4pm CET Better Conversations -Communication Partner Training for language led dementias Anna Volkmer University College London, UK ERN-RND
18 May 2021, 3-4pm CET Benign hereditary choreas Kathryn Peall Cardiff University, UK ERN-RND
8 June 2021, 3-4pm CET MRI pattern recognition in leukodystrophie Nicole Wolf Emma Children’s Hospital, Amsterdam University Medical Centre, the Netherlands ERN-RND
15 June 2021, 3-4pm CET Update Metachromatic Leukodystrophy Samuel Gröschel & Ingeborg Krägeloh-Mann University Hospital Tübingen, Germany ERN-RND
6 July 2021, 3-4pm CET Speech as a biomarker in ataxia: What can it tell us and how should we use it? Adam Vogel University of Melbourne, Australia ERN-RND
26 October 2021, 3-4pm CET Pelizaeus-Merzbacher disease and related disorders Nicole Wolf Emma Children’s Hospital, Amsterdam University Medical Centre, the Netherlands ERN-RND
9 November 2021, 3-4pm CET Clinical Outcome Assessments in Ataxias Thomas Klockgether University Hospital Bonn, Germany ERN-RND

Webinars from partner professional organisations

Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.

Webinars from ERN-RND member patient organisations

Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.