Webinars

ERN-RND provides educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN).

The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks. The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

The webinars are for clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

Date Topic Speaker Institution ERN Focus
14 July,
3-4pm CET
Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson's plus syndromes Jorik Nonnekes & Martin Srp Radboudumc, Netherlands & Charles University, Czech Republic ERN-RND
23 July Introduction to MR Neurography Olivier Scheidegger Bern University Hospital/University of Bern, Switzerland EURO-NMD
20 August Painful neuropathies - from diagnosis to treatment Janneke Hoeijmakers Maastricht University Medical Center, the Netherlands EURO-NMD
8 September,
3-4pm CET
Semantic variant of primary progressive aphasia Robert Rusina & Zsolt Cséfalvay Charles University Thomayer Hospital & Comenius University, Czech Republic ERN-RND
10 September, 3-4pm CET How to assess and manage spastic gait in rare diseases? Gál Ota General University Hospital in Prague, Czech Republic ERN-RND
15 September,
3-4pm CET
A challenge in neurogenetics: Huntington disease in kids Ferdinando Squitieri Fondazione IRCCS Casa Sollievo Sofferenza & CSS-Mendel Institute, Italy ERN-RND
17 September The basics of genetic approaches for NMDs - using DMD as a paradigm Annemieke Aartsma-Rus Leiden University Medical Center, Netherlands EURO-NMD
29 September,
3-4pm CET
How can we develop and implement evidence based rehabilitation in rare disorders? Hortensia Gimeno NIHR & Guy's and St Thomas' NHS Foundation Trust, UK ERN-RND
1 October, 3-4pm CET HSP clinical disease course Rebecca Schüle University of Tübingen, Germany ERN-RND
6 October,
3-4pm CET
Treatment of spasticity in HSP and leukodystrophies Annemieke Buizer & Laura Bonouvrié Amsterdam Research Institute for Movement Sciences & Amsterdam University Medical Center, Netherlands ERN-RND
13 October, 3-4pm CET Diagnostic algorithm for childhood onset chorea Juan Dario Ortigoza-Escobar Sant Joan de Déu Hospital, Barcelona, Spain ERN-RND
20 October,
3-4pm CET
Clinical practice recommendations for physical therapy for Huntington’s disease Bernhard Landwehrmeyer University Ulm, Germany ERN-RND
22 October Personalized care for patients with ALS: ALS Home monitoring & coaching Anita Beelen University Medical Center Utrecht, Netherlands EURO-NMD
3 November,
3-4pm CET
Non-invasive stimulation for ataxias Bart van de Warrenburg Radboud University Medical Centre, Nijmegen, Netherlands ERN-RND
10 November,
3-4pm CET
Rehabilitation in ataxia: current evidence and practice Ludger Schöls University of Tübingen, Germany & ERN-RND coordinator ERN-RND
19 November Congenital Myasthenia Syndrome - an update Sithara Ramdas Oxford University Hospitals NHS Foundation Trust John Radcliffe Hospital EURO-NMD
24 November,
3-4pm CET
Development of Sara-home: a novel assessment tool for patients with ataxia Gessica Vasco & Susanna Summa Ospedale Pediatrico Bambino Gesù, Rome, Italy ERN-RND
1 December, 3-4pm CET Functional movement disorders: a diagnostic guide Christos Ganos Charité, University Medicine, Berlin, Germany ERN-RND
10 December Atypical MND presentations Wladimir BVR Pinto Federal University of São Paulo (UNIFESP), Brazil EURO-NMD