Past webinars

8 June 2021 | MRI pattern recognition in leukodystrophies

Speaker: Nicole Wolf, Emma Children’s Hospital, Amsterdam University Medical Centre, the Netherlands

Slides coming soon

18 May 2021 | Benign hereditary choreas

Speaker: Kathryn Peall, Cardiff University, UK

Recording and slides coming soon

11 May 2021 | Gene therapy in neuromuscular and mitochondrial disorders

Speaker: Thomas Klopstock, Ludwig Maximilans University, Munich, Germany
Slides and recording coming soon

20 April 2021 | Approach to the patient with non-HD chorea

Speaker: Ruth Walker, Mount Sinai School of Medicine, NY, USA

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Recording coming soon

13 April 2021 | MR Biomarkers in Spinocerebellar Ataxias

Speaker: Gülin Öz, University of Minnesota, Minneapolis, USA

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23 March 2021 | Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity

Speaker: Harro Seelaar, Erasmus Medical Center Rotterdam, the Netherlands

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9 March 2021 | Myoclonus dystonia

Speaker: Belén Pérez Dueñas (Chair Marina de Koning-Tijssen)
Focus: Paediatric

9 February 2021 | Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world

Speaker: Amy R. Viehoever

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2 February 2021 | Genetic dystonia and treatment

Speaker: Sylvia Boesch

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26 January 2021 | Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies

Speaker: Günter Höglinger

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10 June 2021 | Addressing disease heterogeneity in myotonic dystrophy. Towards personalized intervention

Speakers: Alain Geille (president Euro-DyMA), Peter-Bram ‘t Hoen and Baziel van Engelen

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27 May 2021 | What’s new in the FSHD field?

Speakers: Sabrina Sacconi (Nice University Hospital, France) & Teresinha Evangelista (Institut de Myologie – Sorbonne Université, GHU Pitié-Salpêtrière, France)

20 May 2021 | Muscle and Ageing

Speaker: Gillian Buttler-Brown

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1 April 2021 | Modeling Disease Progression in GNE Myopathy

Speaker: Melanie Quintana
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11 March 2021 | Telemedicine in NMD: state of the art

Speakers: Sabrina Sacconi, Gabriele Siciliano
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18 February 2021 | Occurrence of both skeletal muscle and peripheral nerve involvement in genetic and acquired disorders

Speaker: Antonio Toscano

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1 December 2020 | Functional movement disorders: a diagnostic guide

Speaker: Christos Ganos

Slides coming soon

24 November 2020 | Development of Sara-home: a novel assessment tool for patients with ataxia

Speakers: Gessica Vasco & Susanna Summa

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Focus: Paediatric

10 November 2020 | Rehabilitation in ataxia: current evidence and practice

Speaker: Ludger Schöls

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Recorded webinar: coming soon

Focus: Neurehabilitation

20 October 2020 | Clinical practice recommendations for physical therapy for Huntington’s disease

Speaker: Bernhard Landwehrmeyer

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Focus: Neurehabilitation

13 October 2020 | Diagnostic algorithm for childhood onset chorea

Speaker: Juan Darío Ortigoza-Escobar

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Focus: Paediatric

6 October 2020 | Treatment of spasticity in HSP & leukodystrophies

Speaker: Annemieke Buizer

Slides: Coming soon
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Foci: Paediatric & Neurorehabilitation

1 October 2020 | Hereditary Spastic Paraplegia clinical disease course

Speaker: Rebecca Schüle

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29 September 2020 | Can we develop & implement evidence based rehabilitation for rare disorders?

Speaker: Hortensia Gimeno

Slides: Coming soon
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Focus: Neurorehabilitation

15 September 2020 | A challenge in neurogenetics: Huntington disease in kids

Speaker: Ferdinando Squitieri

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Focus: Paediatric

10 September 2020 | How to assess and manage spastic gait in rare diseases?

Speaker: Gál Ota

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Focus: Neurorehabilitation

8 September 2020 | Semantic variant of primary progressive aphasia

Speakers: Robert Rusina & Zsolt Cséfalvay

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14 July 2020 | Gait rehabilitation in people with hereditary spastic paraplegia & Respiratory physiotherapy in parkinson's plus syndromes

Speakers: Jorik Nonnekes & Martin Srp

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Focus: Neurorehabilitation

9 July 2020 | Environmental modifiers in Hereditary Spastic Paraplegia

Speaker: Pauline Lallemant-Dudek

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Focus: Neurorehabilitation

30 June 2020 | RCT on intrathecal baclofen in dystonia

Speaker: Laura Bonouvrié

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Focus: Neurorehabilitation

18 June 2020 | Goal setting & outcome measures of interventions in paediatric rehabilitation

Speaker: Annemieke Buizer

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Recorded Webinar: coming soon

Foci: Paediatric & Neurorehabilitation

26 May 2020 | Primary progressive aphasia subtyping in clinical practice

Speaker: Rik Vandenberghe

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12 May 2020 | Paroxysmal dyskinesias: update on clinical and genetic aspects

Speaker: Giovanna Zorzi

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Focus: Paediatric

21 April 2020 | Hypomyelination

Speaker: Nicole Wolf

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Focus: Paediatric

14 April 2020 | Recognizing atypical parkinsonism

Speaker: Wassilios Meissner

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Focus: Neurorehabilitation

6 April 2020 | Huntington's disease & COVID-19: a difficult combination

Speaker: EHA & ERN-RND

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17 March 2020 | X-linked adrenoleukodystrophy

Speaker: Marc Engelen

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Foci: Adult & Paediatric

3 March 2020 | Ultrasound diagnostics for cervical dystonia

Speaker: Tobias Baümer

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18 February 2020 | Mitochondrial disorder with chorea

Speaker: Martin Paucar Arce

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4 February 2020 | Clinical evaluation of dystonia

Speaker: Kailash Bhatia

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28 January 2020 - | Introduction to Leukodystrophies

Speaker: Nicole Wolf

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Focus: Paediatric

21 January 2020 | Immunue-mediated choreas

Speaker: Jan Lewerenz

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14 January 2020 | Inherited ataxias

Speaker: Paola Giunti

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10 December 2020 | Myasthenia Gravis

Speaker: Isabel Leite

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19 November 2020 | Congenital Myasthenia Syndrome - an update

Speaker: Sithara Ramdas

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29 October 2020 | Personalized care for patients with ALS: ALS Home monitoring & coaching

Speaker: Anita Beelen & Esther Kruitwagen-van Reenen

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20 August 2020 | Painful neuropathies - from diagnosis to treatment

Speaker: Janneke Hoeijmakers

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23 July 2020 | Introduction to MR Neurography

Speaker: Olivier Scheidegger

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25 June 2020 | Paediatric muscle imaging

Speaker: Robert-Tves Carlier

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23 April 2020 | Exercise & NMD

Speaker: Nicole Voet

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17 December 2019 | Non-progressive congenital ataxia

Speaker: Alfons Macaya

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Focus: Paediatric

3 December 2019 | Neuroacanthocytosis syndromes, a rare chorea

Speaker: Adrian Danek

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21 November 2019 | Myotonic dystrophies

Speaker: Benedikt Schoser

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5 November 2019 | Clinical approach to cerebellar ataxia

Speaker: Bart van de Warrenburg

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Focus: Neurehabilitation

24 October 2019 | Diagnostic imaging in NMD: the basics

Speaker: Pierre Carlier et al.

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2021 | ERN-RND

2021 | ERN EURO-NMD

2020 | ERN-RND

2020 | ERN EURO-NMD

2019 | ERN-RND