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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Posted on October 28, 2020 Full size 1000 × 500

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Published inShanice_website6

Webinar Schedule

Latest News

  • Clinical Practice for Primary Progressive Aphasia (PPA) – Interview with Robert Rusina

    May 5, 2025
    It takes „about one year from the first symptoms to the first consultation of a physician, and another one year …read more »

  • Survey on Myoclonus Dystonia Syndrome

    April 10, 2025
    Myoclonus-dystonia syndrome (MDS) is a genetic movement disorder with childhood-onset, most frequently caused by SGCE defects. For this survey two …read more »

  • The Importance of Newborn Screening for Metachromatic Leukodystrophy (MLD)

    April 7, 2025
    MLD is a neurodegenerative disorder, that affects children at a very young age, leading to a premature death. In a …read more »

Find us on Bluesky

ERN-RND

@ern-rnd.bsky.social

129 Followers 82 Following 96 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/webinars/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 4 hours

    FREE MOOC “Diagnosing Rare Diseases: from the Clinic to Research and back” - from Monday, May 12, until Friday, July 4
    www.futurelearn.com/courses/rare...
    Co-developed with the ERNs ITHACA and GENTURIS, www.futurelearn.com/courses/rare... and the Fondation Maladies Rares.
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 10 hours

    💻 U#webinar#webinar on “Neurogeriatric Aspects in Rare Forms of Ataxia and HSP”
    📅 13th May, 3:00 CEST
    🗣️ Eleni Zamba-Papanicolaou, Cyprus Institute of Neurology and Genetics
    Sign https://t1p.de/v8r2hde/v8r2h
    Joint with the European Reference Network for Rare Neuromuscular Diseases and
  • Get to this post

    European Journal of Neurology @europeanjournalofneurology.ean.org 1 day

    📈 Trending article "Stratifying Multiple Sclerosis Susceptibility Risk: The Role of HLA‐E*01 and Infectious Mononucleosis in a Population Cohort" by Nova et al. shows HLA-E*01:01 carriers with IM are at increased risk of MS.

    📖 buff.ly/mZrlCHQ

    @ean.org #WileyNeuro
    #Neurology #MultipleSclerosis
  • Get to this post

    ERN EuroBloodNet @erneurobloodnet.bsky.social 3 days

    🩸​ERN-EuroBloodNet is a collaborative network aiming to improve the healthcare services of complex or rare hematological diseases & conditions that require highly specialized treatment in Europe.

    🔔​Follow us & stay up to date on rare haematological diseases!

    youtu.be/QMc5YdA6-44?...
  • Get to this post

    The German Human Genome-Phenome Archive @ghga.bsky.social 2 weeks

    🎬 In case you missed our webinar on Benchmarking and quality control for genomic variant calling with Johannes Köster., you can now watch the recordings on our Training Website: www.ghga.de/resources/tr...
    The slides are also available on GHGA GitHub: github.com/GHGA-Trainin...

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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