Register for Ataxia Global Conference 2022! It has a focus on trial-readiness for ataxia, bringing together representatives from research, clinics, industry as well as patient advocacy organizations. Our sessions cover cohort updates from different continents, clinical and patient-related outcomes, biomarkers and therapy development in ataxia and include an industry session.
When? 4-5 November 2022
Where? hybrid – Dallas, TX, USA and online
(the last day for an early bird registration is 10 October 2022!)
The workshop will have a hybrid format. It will be hosted by Centro Hospitalar Universitário do Porto, Portugal, but participants will also be able to join on line, on Thursday, 27th October. The main aim is addressing the education and training activities currently available in the different centres of the ERN in order to elaborate a common training programme for paediatric transplantation in Europe, providing the trainees with the skills to perform a common and transversal approach to all types of paediatric transplantation procedures. Registration for the workshop is already open until Friday, 14th October at 23:55 CET.
Event: ERN-RND Annual Meeting 2022
Venue: Crona Kliniken, room HS 210, Hoppe-Seyler-Str. 3 · 72076 Tübingen and online
Members of ERN-RND meet once a year to discuss the latest network/disease specific/research updates.
See the full programme here.
In a new leaflet in our section disease knowledge we answer the questions what a recessive ataxia is, which symptoms indicate Friedreich`s ataxia and which forms of treatment are available.
The 24 European Reference Networks (ERNs) for rare and complex diseases are united to support all Ukrainian patients.
This application connects patients from Ukraine with a rare disease with organizations and hospitals, members of the European Reference Network (ERN), with the aim to provide the specialized medical support they may need during this emergency.
Venue: Prague, CZContinue reading “25 – 27 April 2022 | Solve-RD Annual Meeting”