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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
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  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
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  • Expert Centres
    • … for rare neurological diseases
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    • What is the CPMS
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  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
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    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
  • Education & Training
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      • What is EJP RD?
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      • What is Solve-RD?
      • Main Objectives
      • Implementation Steps
      • Analysis
    • Value of Treatment (VoT)
      • VoT project coordinator
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Author: ERN-RND

29 September- 1 October 2022 | ERN-RND Annual Meeting

29 September- 1 October 2022 | ERN-RND Annual Meeting
Continue reading “29 September- 1 October 2022 | ERN-RND Annual Meeting”
Author ERN-RNDPosted on October 1, 2022January 27, 2022Categories Events

9 – 13 July 2022 | FENS Forum 2022

9 – 13 July 2022 | FENS Forum 2022

Continue reading “9 – 13 July 2022 | FENS Forum 2022”

Author ERN-RNDPosted on July 14, 2022January 10, 2022Categories Events

3 – 7 July 2022 | ISPRM/ESPRM/SPMFR

3 – 7 July 2022 | ISPRM/ESPRM/SPMFR

Continue reading “3 – 7 July 2022 | ISPRM/ESPRM/SPMFR”

Author ERN-RNDPosted on July 8, 2022January 10, 2022Categories Events

27 June – 1 July 2022 | 11th European Conference on Rare Diseases & Orphan Products

27 June – 1 July 2022 | 11th European Conference on Rare Diseases & Orphan Products

Continue reading “27 June – 1 July 2022 | 11th European Conference on Rare Diseases & Orphan Products”

Author ERN-RNDPosted on July 2, 2022January 10, 2022Categories Events

25 – 28 June 2022 | 8th Congress of the European Academy of Neurology – Europe 2022

25 – 28 June 2022 | 8th Congress of the European Academy of Neurology – Europe 2022

Continue reading “25 – 28 June 2022 | 8th Congress of the European Academy of Neurology – Europe 2022”

Author ERN-RNDPosted on June 29, 2022January 10, 2022Categories Events

21 – 26 May 2022 | 15th World Congress of Neuromodulation (INS 2022)

21 – 26 May 2022 | 15th World Congress of Neuromodulation (INS 2022)

Continue reading “21 – 26 May 2022 | 15th World Congress of Neuromodulation (INS 2022)”

Author ERN-RNDPosted on May 26, 2022December 14, 2021Categories Events

18 – 21 May| 34th European Academy Of Childhood Disability (EACD) Annual Meeting

18 – 21 May| 34th European Academy Of Childhood Disability (EACD) Annual Meeting

Continue reading “18 – 21 May| 34th European Academy Of Childhood Disability (EACD) Annual Meeting”

Author ERN-RNDPosted on May 22, 2022February 23, 2022Categories Events

28 April-2 May 2022 | 14th European Paediatric Neurology Society Congress

28 April-2 May 2022 | 14th European Paediatric Neurology Society Congress

Continue reading “28 April-2 May 2022 | 14th European Paediatric Neurology Society Congress”

Author ERN-RNDPosted on May 2, 2022November 17, 2020Categories Events

25 – 27 April 2022 | Solve-RD Annual Meeting

25 – 27 April 2022 | Solve-RD Annual Meeting

Venue: Prague, CZ

Continue reading “25 – 27 April 2022 | Solve-RD Annual Meeting”
Author ERN-RNDPosted on April 27, 2022October 26, 2021Categories Events

24 – 27 March 2022 | 16th World Congress on Controversies in Neurology

24 – 27 March 2022 | 16th World Congress on Controversies in Neurology

Continue reading “24 – 27 March 2022 | 16th World Congress on Controversies in Neurology”

Author ERN-RNDPosted on March 27, 2022January 25, 2022Categories Events

24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases

24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases

Continue reading “24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases”

Author ERN-RNDPosted on March 26, 2022December 14, 2021Categories Events

7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation

7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation
Continue reading “7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation”
Author ERN-RNDPosted on March 9, 2022January 28, 2022Categories Events

Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy”

Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy”

Continue reading “Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy””

Author ERN-RNDPosted on March 1, 2022February 16, 2022Categories News

22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia

22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia

Continue reading “22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia”

Author ERN-RNDPosted on February 22, 2022January 25, 2022Categories Events

Publication from the European Metachromatic Leukodystrophy initiative (MLDi)

Publication from the European Metachromatic Leukodystrophy initiative (MLDi)

Continue reading “Publication from the European Metachromatic Leukodystrophy initiative (MLDi)”

Author ERN-RNDPosted on February 16, 2022Categories News

9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform”

9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform”

Continue reading “9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform””

Author ERN-RNDPosted on February 9, 2022January 25, 2022Categories Events

Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion”

Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion”

Continue reading “Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion””

Author ERN-RNDPosted on February 9, 2022February 9, 2022Categories News

8 February 2022 | EURORDIS Black Pearl Award Event

8 February 2022 | EURORDIS Black Pearl Award Event

Continue reading “8 February 2022 | EURORDIS Black Pearl Award Event”

Author ERN-RNDPosted on February 8, 2022January 10, 2022Categories Events

4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases

4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases

Continue reading “4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases”

Author ERN-RNDPosted on January 11, 2022December 14, 2021Categories Events

United Nations adopts Resolution on persons with rare diseases

United Nations adopts Resolution on persons with rare diseases

Continue reading “United Nations adopts Resolution on persons with rare diseases”

Author ERN-RNDPosted on January 10, 2022January 10, 2022Categories News

33 new ERN-RND members!

33 new ERN-RND members!

Continue reading “33 new ERN-RND members!”

Author ERN-RNDPosted on December 20, 2021December 20, 2021Categories News

9 – 11 December 2021 | Workshop: The Future of Medical Data Sharing in Clinical Neurosciences

9 – 11 December 2021 | Workshop:  The Future of Medical Data Sharing in Clinical Neurosciences
Digital meeting

HBP, EBRAINS and the EAN invite the entire scientific community to join this workshop on the Future of Medical Data Sharing in Neuroscience.

More information.

Author ERN-RNDPosted on December 12, 2021November 29, 2021Categories Events

8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021

8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021

Jointly with 27. Jahrestagung der Deutschen Gesellschaft für Neurorehabilitation

Continue reading “8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021”
Author ERN-RNDPosted on December 12, 2021November 29, 2021Categories Events

25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021

25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021

Continue reading “25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021”

Author ERN-RNDPosted on November 26, 2021November 15, 2021Categories Events

25 November 2021 | EJP RD resource webinar on Orphanet

25 November 2021 | EJP RD resource webinar on Orphanet

Continue reading “25 November 2021 | EJP RD resource webinar on Orphanet”

Author ERN-RNDPosted on November 25, 2021November 17, 2021Categories Events

22-23 November 2021 | Ataxia Global Initiative symposium

22-23 November 2021 | Ataxia Global Initiative symposium

Continue reading “22-23 November 2021 | Ataxia Global Initiative symposium”

Author ERN-RNDPosted on November 23, 2021November 3, 2021Categories Events

18 – 19 November | First International conference on Rare Diseases and Paediatric Research

18 – 19 November | First International conference on Rare Diseases and Paediatric Research

Continue reading “18 – 19 November | First International conference on Rare Diseases and Paediatric Research”

Author ERN-RNDPosted on November 20, 2021November 3, 2021Categories Events

18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

Continue reading “18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference”

Author ERN-RNDPosted on November 19, 2021September 23, 2021Categories Events

EURORDIS Photo Award

EURORDIS Photo Award

Continue reading “EURORDIS Photo Award”

Author ERN-RNDPosted on November 10, 2021November 3, 2021Categories News

4 November | Drug repurposing for rare diseases workshop series

4 November | Drug repurposing for rare diseases workshop series

Continue reading “4 November | Drug repurposing for rare diseases workshop series”

Author ERN-RNDPosted on November 4, 2021November 3, 2021Categories Events

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Webinar Schedule

Latest News

  • Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy”

    March 1, 2022
    read more »
  • Publication from the European Metachromatic Leukodystrophy initiative (MLDi)

    February 16, 2022
    read more »
  • Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion”

    February 9, 2022
    read more »

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ERN-RND European Reference Network for Rare Neurological Diseases

Latest Events

  • 25 – 28 June 2022 | 8th Congress of the European Academy of Neurology – Europe 2022

    June 29, 2022
    read more »
  • 27 June – 1 July 2022 | 11th European Conference on Rare Diseases & Orphan Products

    July 2, 2022
    read more »
  • 3 – 7 July 2022 | ISPRM/ESPRM/SPMFR

    July 8, 2022
    read more »

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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