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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: Past Events 2019

17 December | ERN-RND webinar “non-progressive congenital ataxia”

17 December | ERN-RND webinar “non-progressive congenital ataxia”

Continue reading “17 December | ERN-RND webinar “non-progressive congenital ataxia””

Posted on December 17, 2019June 5, 2024Categories Past Events, Past Events 2019

16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features”

16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features”

Continue reading “16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features””

Posted on December 16, 2019June 5, 2024Categories Past Events, Past Events 2019

9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis”

9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis”

Continue reading “9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis””

Posted on December 9, 2019June 5, 2024Categories Past Events, Past Events 2019

6 December | Journée Nationale Maladie de Huntington

6 December | Journée Nationale Maladie de Huntington

Continue reading “6 December | Journée Nationale Maladie de Huntington”

Posted on December 6, 2019June 5, 2024Categories Past Events, Past Events 2019

3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea”

3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea”

Continue reading “3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea””

Posted on December 3, 2019June 5, 2024Categories Past Events, Past Events 2019

27-29 November | Annual Meeting DASNE

27-29 November | Annual Meeting DASNE

Continue reading “27-29 November | Annual Meeting DASNE”

Posted on November 29, 2019September 6, 2024Categories Past Events, Past Events 2019

26 November | 5th BRAIN-TEAM patient organisations day

26 November | 5th BRAIN-TEAM patient organisations day

Continue reading “26 November | 5th BRAIN-TEAM patient organisations day”

Posted on November 26, 2019June 5, 2024Categories Past Events, Past Events 2019

14-16 November | International Ataxia Research Conference (IARC) 2019

14-16 November | International Ataxia Research Conference (IARC) 2019

Continue reading “14-16 November | International Ataxia Research Conference (IARC) 2019”

Posted on November 17, 2019June 5, 2024Categories Past Events, Past Events 2019

5 November | ERN-RND webinar “Clinical Features of Ataxia”

5 November | ERN-RND webinar “Clinical Features of Ataxia”

Continue reading “5 November | ERN-RND webinar “Clinical Features of Ataxia””

Posted on November 5, 2019June 5, 2024Categories Past Events, Past Events 2019

29-30 October | Organising & maximizing rare disease biological sample data in biobanks

29-30 October | Organising & maximizing rare disease biological sample data in biobanks

Continue reading “29-30 October | Organising & maximizing rare disease biological sample data in biobanks”

Posted on October 30, 2019June 5, 2024Categories Past Events, Past Events 2019

23-25 October | Training course: Quality assurance, variant interpretation and data management in the NGS diagnostics era

23-25 October | Training course: Quality assurance, variant interpretation and data management in the NGS diagnostics era

Continue reading “23-25 October | Training course: Quality assurance, variant interpretation and data management in the NGS diagnostics era”

Posted on October 25, 2019June 5, 2024Categories Past Events, Past Events 2019

24 October | WEBINAR: “CPMS upcoming changes”

24 October | WEBINAR: “CPMS upcoming changes”

Continue reading “24 October | WEBINAR: “CPMS upcoming changes””

Posted on October 24, 2019June 5, 2024Categories Past Events, Past Events 2019

24 October | WEBINAR: “Diagnostic imaging in NMD: the basics”

24 October | WEBINAR: “Diagnostic imaging in NMD: the basics”

Continue reading “24 October | WEBINAR: “Diagnostic imaging in NMD: the basics””

Posted on October 24, 2019June 5, 2024Categories Past Events, Past Events 2019

3-4 October | 8th Annual Symposium on ATP1A3 in Disease

3-4 October | 8th Annual Symposium on ATP1A3 in Disease

Continue reading “3-4 October | 8th Annual Symposium on ATP1A3 in Disease”

Posted on October 4, 2019June 5, 2024Categories Past Events, Past Events 2019

3 October | World MSA Day

Continue reading “3 October | World MSA Day”

Posted on October 3, 2019June 5, 2024Categories Past Events, Past Events 2019

Dystonia Awareness Month | September 2019

Dystonia Awareness Month | September 2019

Continue reading “Dystonia Awareness Month | September 2019”

Posted on October 1, 2019June 5, 2024Categories Past Events, Past Events 2019

30 September | EU Health Programme High Level Conference

30 September | EU Health Programme High Level Conference

Continue reading “30 September | EU Health Programme High Level Conference”

Posted on September 30, 2019June 5, 2024Categories Past Events, Past Events 2019

26-27 September | Nationale Konferenz zu Seltenen Erkrankungen (NAKSE)

26-27 September | Nationale Konferenz zu Seltenen Erkrankungen (NAKSE)

Continue reading “26-27 September | Nationale Konferenz zu Seltenen Erkrankungen (NAKSE)”

Posted on September 27, 2019June 5, 2024Categories Past Events, Past Events 2019

23-27 September | International Summer School on Rare Disease Registries and FAIRification of Data

23-27 September | International Summer School on Rare Disease Registries and FAIRification of Data

Continue reading “23-27 September | International Summer School on Rare Disease Registries and FAIRification of Data”

Posted on September 27, 2019June 5, 2024Categories Past Events, Past Events 2019

22-26 September | International Congress of Parkinson’s Disease & Movement Disorders

22-26 September | International Congress of Parkinson’s Disease & Movement Disorders

Continue reading “22-26 September | International Congress of Parkinson’s Disease & Movement Disorders”

Posted on September 26, 2019June 5, 2024Categories Past Events, Past Events 2019

25 September | International Ataxia Awareness Day

25 September | International Ataxia Awareness Day

Continue reading “25 September | International Ataxia Awareness Day”

Posted on September 25, 2019June 5, 2024Categories Past Events, Past Events 2019

17-21 September | 13th European Paediatric Neurology Society (EPNS) Congress

17-21 September | 13th European Paediatric Neurology Society (EPNS) Congress

Continue reading “17-21 September | 13th European Paediatric Neurology Society (EPNS) Congress”

Posted on September 21, 2019June 5, 2024Categories Past Events, Past Events 2019

20-21 September | 6th International Meeting on Spastic Paraparesis and Ataxia

20-21 September | 6th International Meeting on Spastic Paraparesis and Ataxia

Continue reading “20-21 September | 6th International Meeting on Spastic Paraparesis and Ataxia”

Posted on September 21, 2019June 5, 2024Categories Past Events, Past Events 2019

16 September | Rare disease perspectives in Central – Eastern Europe

16 September | Rare disease perspectives in Central – Eastern Europe

Continue reading “16 September | Rare disease perspectives in Central – Eastern Europe”

Posted on September 16, 2019June 5, 2024Categories Past Events, Past Events 2019

22 July 2019 | World Brain Day

22 July 2019 | World Brain Day

Continue reading “22 July 2019 | World Brain Day”

Posted on July 22, 2019June 5, 2024Categories Past Events, Past Events 2019

10-12 July | 3rd EAN Task Force for Rare Neurological Diseases Teaching Course

10-12 July | 3rd EAN Task Force for Rare Neurological Diseases Teaching Course

Continue reading “10-12 July | 3rd EAN Task Force for Rare Neurological Diseases Teaching Course”

Posted on July 12, 2019June 5, 2024Categories Past Events, Past Events 2019

29 June – 2 July 2019 | 5th Congress of the European Academy of Neurology

29 June – 2 July 2019 | 5th Congress of the European Academy of Neurology

Continue reading “29 June – 2 July 2019 | 5th Congress of the European Academy of Neurology”

Posted on July 2, 2019June 5, 2024Categories Past Events, Past Events 2019

29 June 2019 | Dystonia Today – special session at the EAN Congress 2019

29 June 2019 | Dystonia Today – special session at the EAN Congress 2019

Continue reading “29 June 2019 | Dystonia Today – special session at the EAN Congress 2019”

Posted on June 29, 2019June 5, 2024Categories Past Events, Past Events 2019

29 June | Rare Neurological Diseases for Understanding nervous system functions & dysfunctions, 5th Congress of the EAN 2019

29 June | Rare Neurological Diseases for Understanding nervous system functions & dysfunctions, 5th Congress of the EAN 2019

Continue reading “29 June | Rare Neurological Diseases for Understanding nervous system functions & dysfunctions, 5th Congress of the EAN 2019”

Posted on June 29, 2019June 5, 2024Categories Past Events, Past Events 2019

26 June | EJP-RD WP17 focus group meeting

Continue reading “26 June | EJP-RD WP17 focus group meeting”

Posted on June 26, 2019June 5, 2024Categories Past Events, Past Events 2019

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ERN-RND

@ern-rnd.bsky.social

162 Followers 89 Following 175 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 4 days

    "Look, this is what my rare disease is about" - use our #PatientJourney document on #CervicalDystonia to quickly and easily explain to others your rare condition. Be it your employer, your doctor, your friends or the health insurance. Hear about Monika Benson's story: www.youtube.com/watch?v=1A2W...
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 5 days

    "National Reference Networks" - Holm Graessner shares insights at our Scientific Symposium "European Healthcare for RND Patients", Oct 28, 12:20 CET.

    Registration (free of charge): https://f.mtr.cool/mpyqdaaqli
    Program: https://f.mtr.cool/qxrjzcwauh
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 6 days

    Free #Webinar on #FrontotemporalDementia and #PPA - which stands for Primary Progressive Aphasia- today at 3 CEST with Alexa Häger on:
    "Social and Lifestyle Issues Related to FTD and PPA" - to register, please click here: t1p.de/z2aca

    Learn more on PPA with our short interview: tinyurl.com/3nrhcuh3
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 6 days

    💻 U#webinar#webinar on “Social and Lifestyle Issues Related to FTD and PPA”
    📅 30th September, 3:00 CEST
    🗣️ Alexa Häger, University Hospital Aachen, Germany
    Sign https://t1p.de/z2acade/z2aca

    Joint with the European Reference Network for Rare Neuromuscular Diseases and
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    #NewbornScreeningAwarenessMonth

    Learn more about newborn screening with #NewbornScreeningAwarenessMonth #ScientificPill here: erdera.org/article/harm...

    ...and about newborn screening for #MetachromaticLeukodystrophy in our video interview here: www.youtube.com/watch?v=pd7m...

    #MLD #Leukodystrophy
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    💻 U#webinar#webinar on “Social and Lifestyle Issues Related to FTD and PPA”
    📅 30th September, 3:00 CEST
    🗣️ Alexa Häger, University Hospital Aachen, Germany
    Sign https://t1p.de/z2acade/z2aca

    Joint with the European Reference Network for Rare Neuromuscular Diseases and
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    Have you already heard of Lighthouse Concept? Curious to know what it is about? Then join our Symposium on October 28 at 9 CET and listen to Ines Hernando's talk to learn more about it.
    Registration (free of charge) and programme:
    www.ern-rnd.eu/annual-meeti...

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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