Care standards – Guidelines – Chorea & Huntington’s disease

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ERN Coordinators and Project Manager Meeting | Oct. 9.-10. 2023
October 5, 2023
The ERN-RND cordially invites coordinators and project managers of all ERNs to join our annual ERN coordinators and project managers …read more »
Call on the EU institutions and EU Member States’ governments to stand by the European Reference Networks
October 5, 2023
The European Reference Network representatives and people living with a rare disease across Europe, call on the EU institutions and …read more »
TIME TO ACT – IMPROVING RARE DISEASE DIAGNOSIS AND SOLVING THE UNSOLVED RARE DISEASE THROUGH COLLABORATION IN EUROPE
May 11, 2023
The Solve-RD consortium and associated European Solve-RD network, including among others six European Reference Networks, EURORDIS, Orphanet and leading European …read more »