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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
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  • Expert Centres
    • … for rare neurological diseases
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  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
  • Education & Training
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    • Value of Treatment (VoT)
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Care standards – Guidelines – Chorea & Huntington’s disease

Guidelines for Huntington’s disease

Translated to French:

  • Guide clinique international pour le traitement de la maladie de Huntington

Translated to German:

  • Internationale Guideline für die Behandlung der Huntington-Krankheit

Translated to Spanish:

  • Guia internacional de practica clinica para el tratamiento de la enfermedad de Huntington

Webinar Schedule

Latest News

  • Holm Graessner, coordinator of ERN-RND, obtains the EURORDIS European Rare Disease Leadership Award 2023

    January 17, 2023
    This is really a great honour, not just for me but for my team and the people I collaborate with. …read more »
  • European Joint Programme on Rare Diseases (EJP RD)

    December 9, 2022
    Call for Proposals 2023 “Natural History Studies addressing unmet needs in Rare Diseases” The European Joint Programme on Rare Diseases …read more »
  • Abstract submission for the EAN 2023 is open!

    December 9, 2022
    Abstract Submission Presenting your research at Europe’s largest neurology forum has always been exciting, and this year will be even …read more »

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ERN-RND European Reference Network for Rare Neurological Diseases

Latest Events

  • EPNS Congress 2023, Prague

    June 24, 2023
    SAVE THE DATE/Abstracts welcome: EPNS Congress 20-24 June 2023 Congress Center Prague Welcome to the 15th Congress of the European …read more »

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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