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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
    • Objectives of ERN-RND
    • Diseases Groups Covered
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    • ERN-RND coordination office
    • ERN-RND board
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  • Expert Centres
    • … for rare neurological diseases
    • Full members and affiliated partners
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  • Online case discussion with CPMS
    • What is the CPMS
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  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
  • Education & Training
    • Webinars
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    • Solve-RD
      • What is Solve-RD?
      • Main Objectives
      • Implementation Steps
      • Analysis
    • Value of Treatment (VoT)
      • VoT project coordinator
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Care standards – Guidelines – Chorea & Huntington’s disease

Guidelines for Huntington’s disease

Translated to French:

  • Guide clinique international pour le traitement de la maladie de Huntington

Translated to German:

  • Internationale Guideline für die Behandlung der Huntington-Krankheit

Translated to Spanish:

  • Guia internacional de practica clinica para el tratamiento de la enfermedad de Huntington

Webinar Schedule

Latest News

  • Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy”

    March 1, 2022
    read more »
  • Publication from the European Metachromatic Leukodystrophy initiative (MLDi)

    February 16, 2022
    read more »
  • Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion”

    February 9, 2022
    read more »

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ERN-RND European Reference Network for Rare Neurological Diseases

Latest Events

  • 25 – 28 June 2022 | 8th Congress of the European Academy of Neurology – Europe 2022

    June 29, 2022
    read more »
  • 27 June – 1 July 2022 | 11th European Conference on Rare Diseases & Orphan Products

    July 2, 2022
    read more »
  • 3 – 7 July 2022 | ISPRM/ESPRM/SPMFR

    July 8, 2022
    read more »

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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