Frontotemporal Dementia
The Frontotemporal Dementia Disease Knowledge Page provides reference information on care of frontotemporal dementia.Patient Journey Stories of our Patient Representatives
Disease Knowledge Documents
Information and knowledge that has been developed or endorsed by ERN-RND can be found in blue boxes.
ERN-RND Centres for Frontotemporal Dementia
Care Standards
Available in many European languages .
Clinical Rating Scale
Treatment and Therapeutic Algorithm
Online Medical Education
- Neuropsychological assessment in primary progressive aphasia – recommendations and pitfalls in clinical practice by Lize Jiskoot
- Semantic variant of primary progressive aphasia by Robert Rusina & Zsolt Cséfalvay
- Primary progressive aphasia (PPA) subtyping in clinical practice by Rik Vandenberghe
- Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity by Harro Seelaar
Information for Patients
Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.
- Adult
- Video on Genetics and Inheritance
Patient Organisations
Clinical Studies and Trials
