28 Oct. 2025 | 8 am CET
Zoom Registration
Speaker: Different Speakers
Part of the ERN-RND Annual Meeting Care-RND25
Disease Group: Chorea & Huntington’s Disease
Patient Journeys: Reliable Comprehensive Documents which Summarise a Rare Disease
23 Sep Apr. 2025 | 3 – 4 pm CEST
Zoom Registration
Speaker: Petya Mihaylova & Mary Kearney
Irish Consortium: Tallaght University Hospital and Children’s Health Ireland & FARA Ireland
Palliative care in chorea and Huntington’s disease
6 May 2025 | 3 – 4 pm CEST
Zoom Registration
Speaker: Jean-Marc Burgunder
Universtiy of Bern, Neurology clinic, Switzerland
Neurogeriatric aspects of Huntington’s disease and chorea
Cognitive and psychiatric treatment in Huntington’s disease
Winter school 2025 “Challenges of treating rare neurological diseases”
14 Mar. 2025
Speaker: Mayke Oosterloo
Maastricht University Medical Center, The Netherlands
Disease-modifying treatment approaches/Trials in Huntington disease (HD)
Winter school 2025 “Challenges of treating rare neurological diseases”
12 Mar. 2025
Speaker: Bernhard Landwehrmeyer
University Hospital Ulm, Germany
Diagnostic approach to childhood-onset chorea
5 Nov. 2024
Speaker: Juan Darío Ortigoza-Escobar
Hospital Sant Joan de Déu, Barcelona, Spain
Family Experiences with Huntington’s Disease: Insights and Comparisons with other Neurological and Neuropsychiatric Disorders
10 Sep. 2024
Speaker: Siri Kjølaas
Oslo University Hospital, Centre for rare disorders, Oslo, Norway
Huntington disease: new insights into molecular pathogenesis and therapeutic opportunities
Autoimmune Chorea
Insights into growing up in families affected by Huntington’s disease
VPS13A and XK bulk lipid transfer diseases (formerly the now obsolete Levine-Critchley syndrome)
Brain Development in Huntington’s Disease
Learning by example: HD-JUNIOR a national registry for patients with juvenile onset Huntington’s Disease
Better Conversations – Communication Partner Training for language led dementias
18 May 2021
Speaker: Kathryn Peall
Neurosciences and Mental Health Research Institute, Cardiff, United Kingdom
Approach to the patient with non-HD chorea
20 Apr. 2021
Speaker: Ruth Walker
James J. Peters Veterans Affairs Medical Center, New York City, USA
Department of Neurology, Mount Sinai School of Medicine, New York City, USA
